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From time to time, the Waterloo Region Family Network (WRFN) is asked to distribute information on behalf of third parties. WRFN provides general information to self-advocates and families of children with special needs. The information provided on this website is not a recommendation, referral or endorsement of any resource, therapeutic method, or service provider. WRFN is not responsible for any information or services provided by third parties. You are urged to use independent judgment when considering any resource.



National Study on people's experiences of care during pregnancy and childbirth in Canada

The Birth Place Lab at the University of British Columbia is conducting a CIHR-funded national study on people's experiences of care during pregnancy and childbirth in Canada called the RESPCCT Study (Research Examining the Stories of Pregnancy and Childbearing in Canada Today).


Anyone who is currently pregnant or who has had pregnancy or childbearing care in Canada in the last 10 years is welcome to participate in this online survey.


What is unique about this study is that a multi-stakeholder team including people who had pregnancy and childbearing experiences from different provinces, territories, backgrounds, identities, and circumstances spent two years working with researchers and healthcare professionals to develop a survey that is person-centered and designed through the lens and perspectives of people with lived experiences.


You may follow this link to learn more about the RESPCCT Study and to participate: www.respcct.ca.


If you have any questions, please contact: [email protected].

Leah Bowman at 1:33 PM
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For Immediate Release

Wednesday, October 6, 2021


HALIFAX, NS: Today, the Nova Scotia Court of Appeal has paved the road to addressing the human rights of thousands of Nova Scotians with disabilities who continue to languish in institutions or in community without support. This ruling sent a powerful message that there are fundamental systemic barriers in Nova Scotia that deny equality of opportunity for persons with disabilities. 


The Council of Canadians with Disabilities, Inclusion Canada and People First Canada, a coalition granted permission to participate in this Appeal, are now urging the government of Nova Scotia to stop fighting persons with disabilities in courts, to acknowledge to systemic discrimination and to remove barriers to inclusion for all Nova Scotians with intellectual disabilities.


Joseph Delaney, the late Sheila Livingstone and the late Beth MacLean, three people with intellectual disabilities lived in institutions for many years before winning a landmark human rights case.  


In 2019, the Nova Scotia Human Rights Board of Inquiry found that these individuals had the right to live with the help of support workers in homes within the community — referred to as a small options home. 


However, the Human Rights Board of Inquiry rejected the argument of the Disability Rights Coalition that systemic discrimination by the province of Nova Scotia prevented others with intellectual disabilities from accessing the small options homes. That’s why the case went to the Nova Scotia Court of Appeal. 


Today, the Court of Appeal ruled that there is ample evidence that the way the Nova Scotia government provides support to persons with disabilities puts them at a unique disadvantage. This includes prolonged unjustified institutionalization, years-long waits to receive services that they are entitled to or having to relocate to receive those services. 


“The decision finds that the discrimination experienced by Joseph Delaney, Sheila Livingstone, and Beth MacLean was not accidental and was part of a destructive pattern,” says Robin Acton, President of Inclusion Canada, “The government of Nova Scotia needs to act immediately to support people with intellectual disabilities in their own homes in the community.” 


Nova Scotia is facing a human rights emergency. Up to 1900 people with disabilities remain on waitlist for community placement, of which over 1000 remain in institutions and approximately 500 of which remain without services. 


Nova Scotia lags well behind other Canadian provinces in providing community homes and supports for people with intellectual disabilities. Today’s ruling presents an opportunity to the new provincial government in Nova Scotia to acknowledge (1) that they have fundamentally wronged persons with disabilities for decades, (2) that systemic barriers to community inclusion for persons with disabilities are no longer tolerable in a free and democratic society, (3) that they stop fighting persons with disabilities in courts, and (4) that they will work with the community to address their human rights emergency.

Leah Bowman at 1:30 PM
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Rally4ODSP was a great success with media, great weather and speakers very enjoyable!! Please share these links for and wide. 


Read the MCCSS disappointing response to the rally in the CBC article. 


Kevin Head from People First Toronto was a star!  His speech is in the CBC Instagram post. Anthony Frisina did an excellent speech and was feature in all the articles. ODSP Action Coalition are pros too! 



Cbc article:





QP Briefing



More to come: 

The star will publish something soon.

Plus maybe Newstalk 1010 this weekend. 


You can view the video of the rally here:




Leah Bowman at 8:35 PM
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Developmental Disability Family Caregiver Working Group

Call of Expressions of interest to be part of a Developmental Disability Family Caregiver Working Group that is being headed up by the Ontario Caregivers Association.


For more details, click here.

If you are interested in putting your name forward, please forward to [email protected] 

Leah Bowman at 4:47 PM
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Crafting Your Individualized Housing Action Plan

Ten-week Virtual Program


Join us for a unique program that will help you:

  • plan and create your housing vision for the future
  • explore various individualized housing & support models
  • learn about ways you can maximize financial resources
  • discover strategies to help reduce costs
  • identify goals and task to begin implementation of your plan

Series includes:

  • group learning sessions and individual support of Planning Facilitator
  • dedicated time with your Independent Facilitator between workshop sessions to support you planning process
  • individual consultation with housing specialist Kelly Casey to optimize your plan
  • preparation of your individualized housing plan complete with a budget
  • meet with and learn from other families interested in individualized housing

Cost fot the series is $1600.00 (HST included) and is an eligible Passport expense.


To register, click here.

Leah Bowman at 4:38 PM
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Name: Leah Bowman
Posts: 268
Last Post: October 19, 2021
Waterloo Region Family Network
Name: Waterloo Region Family Network
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