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From time to time, the Waterloo Region Family Network (WRFN) is asked to distribute information on behalf of third parties. WRFN provides general information to self-advocates and families of children with special needs. The information provided on this website is not a recommendation, referral or endorsement of any resource, therapeutic method, or service provider. WRFN is not responsible for any information or services provided by third parties. You are urged to use independent judgment when considering any resource.

 


 

Cognitive Behavioural Therapy workshop for postpartum depression

Not feeling yourself after having a baby? Since birth have you...

  • been sad and tearful?
  • felt overwhelmed or unable to concentrate?
  • lost interest of pleasure?
  • felt hopeless, frustrated, or angry?
  • fely anxious?
  • had difficulties connecting to your baby?

Our Place Family Resource and Early Years Centre is hosting a free one-day Cognitive Behavioural Therapy (CBT) workshop for postpartum depression. The workshops will be delivered by Dr. Ryan Van Lieshout, MD, PhD.


You may be eligible to participate in the workshop if you are 18 years of age or older and have given birth within the past 12 months.

 

The workshops are part of a study conducted by McMaster University.

 

To register for the workshop or to receive more information please contact the study coordinators, Meena Rangan and Haley Layton kw1daycbt@gmail.com.

 

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Better Nights, Better Days - Sleep Study

Development, implementation, and evaluation of an internet-based behavioural sleep intervention study for children, ages 4-10, with Attention Deficit/Hyperactivity Disorder (ADHD), Autism Spectrum Disorder (ASD), Cerebral Palsy (CP), and Fetal Alcohol Spectrum Disorder (FASD).


Learn more about this opportunity here.

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Caregiver Advisory Panel

The Change Foundation is seeking caregivers to join their Caregiver Advisory Panel.

 

The caregivers on the panel are regularly asked for their input and thoughts on some of The Change Foundation’s caregiver-focused ideas, tools and products, and are surveyed on different aspects of the caregiving experience on a regular basis.

 

Learn more about this opportunity here.

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Secret Agent Society: Operation Regulation – Trasdiagnostic Trial

Do you have a child between 8-13 years of age with Neurodevelopmental Disorders?

York University invites you to participate in a research study: Secret Agent Society: Operation Regulation –  Trasdiagnostic Trial.  
 
What is the research about?

This study is about a new program aimed at helping youth with neurodevelopmental disorders cope with their emotions and handle the day-to-day stressors in their lives using a variety of activities and tools, like an emotion focused computer game, cue cards, and parent and teacher handouts. 
 
What does participation involve?

Participating involves weekly 1-hour visits to York University where you and your child will meet with a trained therapist for one-on-one therapy. Your child will get to do an assortment of activities and play games (e.g., computer games, problem solving tasks, and role playing). The activities are aimed to help build emotion regulation skills. 
 
You and your child will also participate in research to evaluate the effectiveness of the program. 
 
There is no cost to the program, except for parking and travel to the university. 
 
I’m interested! What next?

For more information, please contact sasor@yorku.ca or Dr. Jonathan Weiss, Principal Investigator on the study, at jonweiss@yorku.ca
 
You can also visit the website at: http://ddmh.lab.yorku.ca/secret-agents-society-operation-regulation/ 
 
Limited space is available, so families will be contacted on a first come, first serve basis.

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Study for children aged 6-12, with ADHD and ASD

The Center for Pediatric Excellence is conducting a research study for children aged 6-12, with ADHD and Autism Spectrum Disorder (ASD). Your child may be eligible to participate in a research study using a drug already approved by Health Canada. 

 

You child may qualify if they have been diagnosed with high functioning autism and ADHD. 

 

Qualified participants may receive study-related psychological evaluation(s), compensation for visit-related expenses and receive a Health Canada-approved medication to treat ADHD in children. Your doctor may continue to prescribe this medication on completion of the study. 

 

Contact Center for Pediatric Excellence at 613-726-7355 or info@cfpe.ca.    

 

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Confidential Market Research

Confidential market research occurring in several cities across Canada is looking for feedback from teens with ADHD and their parents - compensation of $175 to $225. 

The study will focus on their perspectives and thoughts on new therapies, and gaining insight into ways in which we can help improve the lives of teens with ADHD. Each duo that participates in this study will be compensated $175 - $225 for their time and help. The research is conducted in person and is not a group session but an individual interview with the parent and child.

This is not a sales presentation. It is strictly Market Research. It will give parent and child the opportunity to voice their opinions about this important topic. All information given is strictly confidential and the sponsoring client (a pharmaceutical company) of the research will not get any identifying information about any of the participant. The study is being conducted in several cities Canada.

Basic Qualifications
Parents:

  • Believes that medication plays a role in the ADHD treatment
  • May or may not be diagnosed with ADHD themselves

Adolescents:

  • Between the ages of 13-17 (recruit a mix of age ranges) – must be in High School or planning to attend in the fall
  • Must have taken medication for the treatment of ADHD for minimum 2 years during the past 5 years – they do not have to be taking medication today
  • Mix of genders if possible

90-minute sessions: 45 min interview with the parent followed by 45-min interview with the teen. Payment $225
60-minute sessions: 30-40-minute dyad (parent and adolescent together), then 15-20 minutes with the teen only. Payment $175

This session is being held in Toronto on June 24th and 25th.  

 

Contact info: 
dlabkin@marketresearch2go.com, 416-799-1496.

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Technokids: Exploring Daily Electronic Media Use of Children With and Without Autism

You are invited to participate in a research study conducted by and Eric Gilliland, B.A. (Hons.) under the supervision of Dr. Kimberley Babb, Ph.D., from the Department of Psychology at the University of Windsor. The results of this research will form the basis of a Master’s thesis. If you have any questions or concerns about this research, please contact Eric Gilliland at technokidstudy@gmail.com or Dr. Babb at kbabb@uwindsor.ca.

 

PURPOSE OF THE STUDY: The present study is being conducted to learn more about the patterns of daily media behaviours, different media devices used, types of content accessed, and types of media activities engaged in by children diagnosed with Autism Spectrum Disorder (i.e., autism) and children without any mental health diagnoses to understand how their electronic media use might be similar or different.

 

To learn more about this study please read the Letter of Information

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Caring for the Caregiver

A research project evaluating Acceptance & Commitment Training (ACT) for female caregivers of individuals with fetal alcohol spectrum disorder (FASD).


ACT seeks to help individuals to struggle less with difficult things in their lives and mindfully connect with things that are most important in a way that is loving and respectful. With an introduction to the concept of ‘mindfulness,’ ACT does not attempt to directly change or stop unwanted thoughts or feelings, but to develop a new mindful relationship with those experiences that can free a person up to being open, and to take action consistent with what they care about. This is a research project evaluating the benefits of ACT for caregivers.

 

Who Should Attend?
Female caregivers of individuals with FASD.

 

Dates & Times

May 24th: 5:30pm-9:00pm
May 25th: 9:00am-4:00pm
June 19th: 5:30pm-9:00pm
Location: Toronto Western Hospital, 9 East Wing, Group Room B (Room 9E436).
*You must attend all dates

 

Want more information?
Video: https://www.surreyplace.ca/caring-for-the-caregiver-through-act/ 
Articles: http://rdcu.be/I6jT & https://bit.ly/2tSUbcZ
 

Interested?
Contact Brianne Redquest at brianne.redquest@camh.ca or 416-535-8501 ext. 33923

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Sleep Quality in Parents of Children 4-10 years with Autism Spectrum Disorder

Sleep Quality in Parents of Children 4-10 years with Autism Spectrum Disorder - Holland Bloorview Kids Rehabilitation Hospital 

 

What is this study about?
The purpose of this study is to study the relationships between your child’s sleep and your sleep and health. This information might help us learn more about what may help to improve sleep in other parents of children with Autism Spectrum Disorder (referred to as ASD).

 

Who can participate?
English-speaking parents of a child 4-10 years of age with Autism Spectrum Disorder (1 year since diagnosis).

Parents will be excluded if he/she:

  • Work night shifts or is employed at nighttime
  • Has a physician-diagnosed sleep problem (e.g. sleep apnea, narcolepsy, restless leg syndrome etc.)
  • Has infants less than 12 months at home
  • Provides casual care for child with ASD (e.g. grandparent, babysitter, daycare or respite provider) that does not provide nighttime care for the child.
  • Child with ASD also has a permanent movement disorder (e.g. Duchenne muscular dystrophy) or neuromuscular diagnosis (e.g. CP) that requires physical care at night time (e.g. suctioning or repositioning etc.)

What’s involved?
If you agree to participate in this study, you will be asked to complete an online survey that takes about 60 minutes to complete. The survey asks questions about:

  • You and your family
  • Your child’s autism severity and behaviours
  • You and your child’s sleep
  • Your health, including stress and depression
  • Your coping and support networks

Participants may choose to enter into a draw to win one of ten $100 e-gift cards.

 

Principal Investigator:
Pam Green and Samantha Micsinszki

 

To ask questions or to sign up, contact: Samantha at  parentsleepstudy@hollandbloorview.ca

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A Trial of Acceptance & Commitment Therapy for Caregivers

A Trial of Acceptance & Commitment Therapy for Caregivers - A research project evaluating Acceptance & Commitment Therapy (ACT) for parents of individuals with autism. Presented by York University and Centre for Addiction and Mental Health (camh)

 

What is the research about?

This is a research project evaluating the benefits of Acceptance & Commitment

Therapy (ACT) for parents. ACT seeks to help individuals to struggle less with

difficult things in their lives and mindfully connect with things that are most

important in a way that is loving and respectful. With an introduction to the

concept of ‘mindfulness,’ ACT does not attempt to directly change or stop

unwanted thoughts or feelings, but to develop a new mindful relationship with

those experiences that can free a person up to being open, and to take action

consistent with what they care about. Each workshop is facilitated by a parent of an

individual with autism and a trained clinician.

 

Who should attend?

  • Mothers and fathers of children, youth and adults with autism. Fluency in English is required.

What does participation involve?

Participating involves attending three workshop sessions held in London, Ontario:

Workshop 1:

Friday, April 12, 5:30pm-9:00pm   

Saturday, April 13, 9:00am-4:30pm 

Saturday, May 11, 1:00pm-4:30pm

Workshop 2:

Friday, September 13, 5:30pm-9:00pm

Saturday, September 14, 9:00am-4:30pm

Saturday, October 19, 1:00pm-4:30pm

  • You will be randomly allocated to attend either Workshop 1 or Workshop 2.
  • As a participant, you will need to attend all three sessions and complete some questionnaires before the workshop, and again three times after that.
  • Participation in the workshop is free.

I’m interested! What next?

For more information, please contact Andrea Maughan, at amaughan@yorku.ca.

 

For more information on ACT workshops, you can check out our short video the : https://www.surreyplace.ca/caring-for-the-caregiver-through-act/

As well as these articles: http://rdcu.be/I6jT & https://bit.ly/2tSUbcZ

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