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From time to time, the Waterloo Region Family Network (WRFN) is asked to distribute information on behalf of third parties. WRFN provides general information to self-advocates and families of children with special needs. The information provided on this website is not a recommendation, referral or endorsement of any resource, therapeutic method, or service provider. WRFN is not responsible for any information or services provided by third parties. You are urged to use independent judgment when considering any resource.

 


 

Ontario Federation for Cerebral Palsy Bulletin

 

Free Fundamental Sledge Hockey Skill Development (Para Ice Hockey)

Where: Commander Recreation Centre 140 Commander Blvd Scarborough When: Sundays - January 15th 2023 through March 12th 2023 Time: 2:30pm-3:30pm Ages: 6 years to 21years Registration date: opens - December 7th 2022 - space still available Click here to register For more information: Contact : Malvern Community Centre  (416) 396-4054, Terry.chung@toronto.ca

P4P: Early Planning Toolkit Webcast

We all share the same dream for our children—a life filled with friends, joy and opportunities. As a parent/caregiver of a child with a disability, we know you already have a lot on your plate. But there are things you can do now that will make a huge impact on your child’s future. The Early Planning Toolkit will help you get started. The Great Start Webcast is the first of two webcasts offered in the Early Planning Toolkit and touches on those critical ideas you can focus on now that will impact your child's future.  Dr. Peter Rosenbaum of the CanChild Centre at McMaster University speaks to the limitless potential of children with disabilities. Plus, two proactive mothers with young children with a disability share their insights on advocating, building a team, finding friends and transitioning to school. Register here: https://www.planningnetwork.ca/events/the-early-planning-priorities-webcast-january-25

Service Canada Webinars

Service Canada is offering monthly webinars to provide information to Service Delivery Partners about federal government programs and services that could benefit their clients - including Indigenous peoples, seniors, persons with disabilities, families, youth, workers (including self-employed individuals), employers and newcomers.   Click here to view a list of upcoming dates and to register for a session. The webinars are delivered via Webex.

City of Toronto: Accessible Streets Survey

Vibrant Healthcare Alliance: Dialectical Behavior Therapy (D.B.T.) Series

Dialectical Behavior Therapy (D.B.T.) 8-Week Series For Women, Girls over (16) Trans, Two Spirit, Non Binary Peoples and Other Gender Marginalized Individuals with and without Disabilities When: Fridays January 20, through March 10, 2023 Where/How: Vibrant Healthcare Alliance - Zoom Time: 3:00pm – 4:30pm Cost: Free To register please call or email Lucy at 416-486-8666 ext.226 lucyn@vibranthealthcare.ca

January 24: Panel discussion on public toilet provision for people with disabilities

A message from Rhonda Solomon, PhD candidate at the University of Toronto. Hello!  My name is Rhonda Solomon, and I am a PhD candidate at the University of Toronto.  I am organizing and moderating a panel discussion on public toilet provision for people with disabilities. The title of the discussion is Disability in the City: Inclusive Public Toilets as a Humanizing Feature of the Urban Realm.     The panel’s keynote speaker is Dr Tanya Titchkosky, Professor of Disability Studies and Associate Chair of OISE’s Social Justice Education Program at University of Toronto.  The event will be held via Zoom on January 24, 2023, at 10am – 11:30am EST. It is hosted by the University of Toronto School of Cities and the Centre for Global Disability Studies at the University of Toronto.    Registration is free but required in order to access the Zoom link.  Click here to register.

Leadership Program: Youth with Physical Disabilities Information Night

Camp Awakening offers overnight summer camp and leadership opportunities for participants aged 8-29 with physical disabilitiesNext Monday, January 23 at 7:30pm we are hosting a Virtual Information Night for our Leaders-In-Training (LIT) program   You can lean more at our website here, and watch a video about the LIT program here. If you wish to attend the information night please email info@campawakening.com to receive the Zoom link.   Overview of the LIT program: WHO: Youth with physical disabilities, aged 18-24.   WHAT: A 9 week leadership program where participants will progress their leadership skills through group learning sessions, mentorship opportunities, and the development and execution of a fundraising and awareness building final project. While at camp participants will enjoy their favourite camp activities such as canoeing, kayaking, swimming, rock climbing, arts & crafts, archery and more!    WHEN: The program spans from May 29 to July 28, 2023. The in-person portion of the program is from June 25-July 1. The remaining 8 weeks are comprised of group online meetings.    WHERE: The online portion will be hosted by Zoom and the in-person portion is at Cedar Ridge Camp.

Western University Research Study

NEW ONLINE SURVEY FOR CANADIAN CLINICIANS WORKING WITH CHILDREN WITH CEREBRAL PALSY (CP) Western University is currently recruiting Canadian rehabilitation health professionals who have experience working with children with Cerebral Palsy and complex communication needs to complete a survey (Access survey here: https://redcap.nca.uwo.ca/surveys/?s=KRFWCJHD7XLT3HME). The purpose of the survey is to help us understand the current language comprehension assessment practices and needs, and to introduce you to a new assessment tool called the Computer-Based Instrument for Low Motor Language Testing (C-BiLLT). The survey is anonymous and can be completed online. If you are interested, please see the flyer attached for more information, or you can email the Research Coordinator, Sarah, at hopmansn@mcmaster.ca. Thank you! For more information click here: https://ofcp.ca/wp-content/uploads/2022/09/CBiLLT-Aim1Part1-ClinicianSurveyFlyer.pdf NEW ONLINE SURVEY FOR CANADIAN PARENTS OR CAREGIVERS OF CHILDREN WITH CEREBRAL PALSY (CP) Western University is currently recruiting Canadian parents or caregivers of children with Cerebral Palsy and complex communication needs to complete a survey (Access survey here: https://redcap.nca.uwo.ca/surveys/?s=WACM97HJJJTDN7J9). The purpose of the survey is help us understand your experiences and needs related to assessment of children’s language comprehension, and to introduce you to a new assessment tool called the Computer-Based Instrument for Low Motor Language Testing (C-BiLLT). The survey is anonymous and can be completed online. If you are interested, please see the flyer attached for more information, or you can email the Research Coordinator, Sarah, at hopmansn@mcmaster.ca. Thank you! For more information click here: https://ofcp.ca/wp-content/uploads/2022/10/CBiLLT-Aim1Part1-ParentSurveyFlyerVersion2-August4_22.pdf  RR36

Research Recruitment: Exploring the Influence of Sexuality and Gender on the Health Care Transition

Sexuality (who someone is attracted to and their activities to express sexuality) and Gender identity (who they are) are two core elements of human personality. Transition from childhood to adulthood is the prime time when an individual develops these core elements of life. It is evident that adolescents or young adults with cerebral palsy do not receive enough education or support from the health care providers during their transition period regarding sexuality and gender. People with cerebral palsy may require additional education and support due to physical impairment; however, their needs are generally overlooked and they are often considered as asexual by their health care providers. In this study, our goal is to understand the influences of sexuality and gender identity on the transition experience of youth with cerebral palsy. We will use a questionnaire and interviews to gather information about their experiences. Adolescents or young adults aged 14 to 25 with cerebral palsy of any gender are asked to contact the study team at lbrunto3@uwo.ca RR 37

Living with Cerebral Palsy: Pain Survey for Families

Families of children and adolescents living with Cerebral Palsy are invited to participate in an online study to better understand the CP pain experience. Parents, children/adolescents living with CP, and sibling(s) are all encouraged to partake! Interested family members can complete the online consent form and will receive a survey access code shortly after their consent form is submitted. For more information, please email cppain@iwk.nshealth.ca

Sign up here: https://is.gd/cppain RR38

Holland Bloorview Kids Rehabilitation Hospital: Switch-App Research

Switch-App: A novel and versatile home-based approach to personalized access technology for children with cerebral palsy and complex communication needs.  Participate in Research! Do you have a child with CP and complex communication needs? You might be interested in participating in this study at Holland Bloorview Kids Rehabilitation Hospital. Looking for more information? Please click here to see our flyer: https://hollandbloorview.ca/sites/default/files/2022-08/eREB0288%20-%20SwitchApp%20Phase%202%20-%20Recruitment%20flyer%20-%2020210331.pdf If you think this might be useful for your child, or if you have any questions, please feel free to contact our research team: Sarah Irwin sirwin@hollandbloorview.ca (416) 425-6220 ext. 3270

 

ONLINE RESOURCES:

NORTH YORKERS FOR DISABLED PERSONS (NYDP) COVID-19 WEEKLY UPDATES: https://www.nydp.ca/covid-19-updates.html CANADA Government COVID-19 INFO: https://www.canada.ca/en/public-health/services/diseases/coronavirus-disease-covid-19.html ONTARIO Government COVID-19 INFO: Ontario cases status updated twice a day, at 10:30 a.m. and 5:30 p.m. ET. https://www.ontario.ca/page/2019-novel-coronavirus

City of TORONTO COVID-19 UPDATES: https://www.toronto.ca/home/covid-19 OFCP e-Bulletin archive

Trish Coupal at 10:10 AM
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