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From time to time, the Waterloo Region Family Network (WRFN) is asked to distribute information on behalf of third parties. WRFN provides general information to self-advocates and families of children with special needs. The information provided on this website is not a recommendation, referral or endorsement of any resource, therapeutic method, or service provider. WRFN is not responsible for any information or services provided by third parties. You are urged to use independent judgment when considering any resource.

 


 

Transitional Care Study

The Centre of Family Medicine, Mobiliy Clinic and McMaster University are conducting a study for transitional youth with physical disabilities in Kitchener-Waterloo.

 

Youth individuals with special healthcare needs often lose the quality of care they received as children once they turn 18 years old and must transition to the adult healthcare system.

This study will assess the need for a local program that would aim to help youth individuals with physical disability make the transfer from specialized pediatric care to adult care.

 

Click here for study advertisment.

Click here for transitional alumnus consent.

Click here for youth & caregiver consent.

Click here for youth under 16 years old consent.

 

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Microboards

Information Gathering from those who have a Microboard, Aroha or Self-Directed Support Organization

Microboards Ontario provides leadership in the development of Microboards through education, advocacy and support to people and communities across Ontario. Our vision is that any person within Ontario who wants a Microboard is supported to have one.  

Currently, we are interested in finding out as much as we can about the experience of people with disabilities, their families and/or loved ones who have already established their own supportive not-for profit organization. This type of organization may be referred to as a Microboard, Aroha or Self-Directed Support Organization.

If you know someone in Ontario who has already created a Microboard, Aroha or Self-Directed Support Organization please pass this survey along by sending the link.

https://www.surveymonkey.com/r/?sm=qKW2b52U0sxY66hyAem8mHncEyFIlbZzAOAmpjz3ICo_3D

Note: This survey is completely anonymous. The data that we collect will inform our understanding and therefore Microboards Ontario’s strategic direction over the next few years.

If you are interested in having contact with Microboards Ontario for information and /or if you would like to share your story and insights with MBO, please contact us by emailing our Provincial Consultant, Judith McGill at jlmcgill11@gmail.com or calling at (416) 997-3311

Visit our website at www.microboardsontario.com.

 

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Nursing Care for People with Developmental Disabilities

It is based on a review of literature and was supported by a Faculty of Health Minor Research Grant.  

 

The project is a collaboration between the Office of Women's Mental Health Research in Mental Health (Dr. Nazilla Khanlou, Chair) and Nursing at the Centre for Addiction & Mental Health (Dr. Rani Srivastava, Chief of Nursing and Professional Practice at CAMH). 

Citation information:  Khanlou N, Khan A, Vazquez LM, Srivastava R, & Karunakaran A. (2019) 

Information Sheet 13: Nursing Care for People with Developmental Disabilities. Toronto: York University.  Available url:  https://nkhanlou.info.yorku.ca/files/2019/11/Final-Info-Sheet-Nursing-NKhanlou-Nov-2019.pdf

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Cognitive Behavioural Therapy workshop for postpartum depression

Not feeling yourself after having a baby? Since birth have you...

  • been sad and tearful?
  • felt overwhelmed or unable to concentrate?
  • lost interest of pleasure?
  • felt hopeless, frustrated, or angry?
  • fely anxious?
  • had difficulties connecting to your baby?

Our Place Family Resource and Early Years Centre is hosting a free one-day Cognitive Behavioural Therapy (CBT) workshop for postpartum depression. The workshops will be delivered by Dr. Ryan Van Lieshout, MD, PhD.


You may be eligible to participate in the workshop if you are 18 years of age or older and have given birth within the past 12 months.

 

The workshops are part of a study conducted by McMaster University.

 

To register for the workshop or to receive more information please contact the study coordinators, Meena Rangan and Haley Layton kw1daycbt@gmail.com.

 

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Better Nights, Better Days - Sleep Study

Development, implementation, and evaluation of an internet-based behavioural sleep intervention study for children, ages 4-10, with Attention Deficit/Hyperactivity Disorder (ADHD), Autism Spectrum Disorder (ASD), Cerebral Palsy (CP), and Fetal Alcohol Spectrum Disorder (FASD).


Learn more about this opportunity here.

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Caregiver Advisory Panel

The Change Foundation is seeking caregivers to join their Caregiver Advisory Panel.

 

The caregivers on the panel are regularly asked for their input and thoughts on some of The Change Foundation’s caregiver-focused ideas, tools and products, and are surveyed on different aspects of the caregiving experience on a regular basis.

 

Learn more about this opportunity here.

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Secret Agent Society: Operation Regulation – Trasdiagnostic Trial

Do you have a child between 8-13 years of age with Neurodevelopmental Disorders?

York University invites you to participate in a research study: Secret Agent Society: Operation Regulation –  Trasdiagnostic Trial.  
 
What is the research about?

This study is about a new program aimed at helping youth with neurodevelopmental disorders cope with their emotions and handle the day-to-day stressors in their lives using a variety of activities and tools, like an emotion focused computer game, cue cards, and parent and teacher handouts. 
 
What does participation involve?

Participating involves weekly 1-hour visits to York University where you and your child will meet with a trained therapist for one-on-one therapy. Your child will get to do an assortment of activities and play games (e.g., computer games, problem solving tasks, and role playing). The activities are aimed to help build emotion regulation skills. 
 
You and your child will also participate in research to evaluate the effectiveness of the program. 
 
There is no cost to the program, except for parking and travel to the university. 
 
I’m interested! What next?

For more information, please contact sasor@yorku.ca or Dr. Jonathan Weiss, Principal Investigator on the study, at jonweiss@yorku.ca
 
You can also visit the website at: http://ddmh.lab.yorku.ca/secret-agents-society-operation-regulation/ 
 
Limited space is available, so families will be contacted on a first come, first serve basis.

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Study for children aged 6-12, with ADHD and ASD

The Center for Pediatric Excellence is conducting a research study for children aged 6-12, with ADHD and Autism Spectrum Disorder (ASD). Your child may be eligible to participate in a research study using a drug already approved by Health Canada. 

 

You child may qualify if they have been diagnosed with high functioning autism and ADHD. 

 

Qualified participants may receive study-related psychological evaluation(s), compensation for visit-related expenses and receive a Health Canada-approved medication to treat ADHD in children. Your doctor may continue to prescribe this medication on completion of the study. 

 

Contact Center for Pediatric Excellence at 613-726-7355 or info@cfpe.ca.    

 

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Confidential Market Research

Confidential market research occurring in several cities across Canada is looking for feedback from teens with ADHD and their parents - compensation of $175 to $225. 

The study will focus on their perspectives and thoughts on new therapies, and gaining insight into ways in which we can help improve the lives of teens with ADHD. Each duo that participates in this study will be compensated $175 - $225 for their time and help. The research is conducted in person and is not a group session but an individual interview with the parent and child.

This is not a sales presentation. It is strictly Market Research. It will give parent and child the opportunity to voice their opinions about this important topic. All information given is strictly confidential and the sponsoring client (a pharmaceutical company) of the research will not get any identifying information about any of the participant. The study is being conducted in several cities Canada.

Basic Qualifications
Parents:

  • Believes that medication plays a role in the ADHD treatment
  • May or may not be diagnosed with ADHD themselves

Adolescents:

  • Between the ages of 13-17 (recruit a mix of age ranges) – must be in High School or planning to attend in the fall
  • Must have taken medication for the treatment of ADHD for minimum 2 years during the past 5 years – they do not have to be taking medication today
  • Mix of genders if possible

90-minute sessions: 45 min interview with the parent followed by 45-min interview with the teen. Payment $225
60-minute sessions: 30-40-minute dyad (parent and adolescent together), then 15-20 minutes with the teen only. Payment $175

This session is being held in Toronto on June 24th and 25th.  

 

Contact info: 
dlabkin@marketresearch2go.com, 416-799-1496.

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Technokids: Exploring Daily Electronic Media Use of Children With and Without Autism

You are invited to participate in a research study conducted by and Eric Gilliland, B.A. (Hons.) under the supervision of Dr. Kimberley Babb, Ph.D., from the Department of Psychology at the University of Windsor. The results of this research will form the basis of a Master’s thesis. If you have any questions or concerns about this research, please contact Eric Gilliland at technokidstudy@gmail.com or Dr. Babb at kbabb@uwindsor.ca.

 

PURPOSE OF THE STUDY: The present study is being conducted to learn more about the patterns of daily media behaviours, different media devices used, types of content accessed, and types of media activities engaged in by children diagnosed with Autism Spectrum Disorder (i.e., autism) and children without any mental health diagnoses to understand how their electronic media use might be similar or different.

 

To learn more about this study please read the Letter of Information

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