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From time to time, the Waterloo Region Family Network (WRFN) is asked to distribute information on behalf of third parties. WRFN provides general information to self-advocates and families of children with special needs. The information provided on this website is not a recommendation, referral or endorsement of any resource, therapeutic method, or service provider. WRFN is not responsible for any information or services provided by third parties. You are urged to use independent judgment when considering any resource.

 


 

Autism Ontario's Adult Newsletter - June 2019

Autism Ontario has shared their June 2019 Adult Newsletter. In this newsletter you will find information about:

  • News, opportunities and research 
  • Employment 
  • Community
  • Call for Community Voices

You can read the June 2019 Autism Ontario Adult Newsletter here

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Secret Agent Society: Operation Regulation – Trasdiagnostic Trial

Do you have a child between 8-13 years of age with Neurodevelopmental Disorders?

York University invites you to participate in a research study: Secret Agent Society: Operation Regulation –  Trasdiagnostic Trial.  
 
What is the research about?

This study is about a new program aimed at helping youth with neurodevelopmental disorders cope with their emotions and handle the day-to-day stressors in their lives using a variety of activities and tools, like an emotion focused computer game, cue cards, and parent and teacher handouts. 
 
What does participation involve?

Participating involves weekly 1-hour visits to York University where you and your child will meet with a trained therapist for one-on-one therapy. Your child will get to do an assortment of activities and play games (e.g., computer games, problem solving tasks, and role playing). The activities are aimed to help build emotion regulation skills. 
 
You and your child will also participate in research to evaluate the effectiveness of the program. 
 
There is no cost to the program, except for parking and travel to the university. 
 
I’m interested! What next?

For more information, please contact sasor@yorku.ca or Dr. Jonathan Weiss, Principal Investigator on the study, at jonweiss@yorku.ca
 
You can also visit the website at: http://ddmh.lab.yorku.ca/secret-agents-society-operation-regulation/ 
 
Limited space is available, so families will be contacted on a first come, first serve basis.

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Study for children aged 6-12, with ADHD and ASD

The Center for Pediatric Excellence is conducting a research study for children aged 6-12, with ADHD and Autism Spectrum Disorder (ASD). Your child may be eligible to participate in a research study using a drug already approved by Health Canada. 

 

You child may qualify if they have been diagnosed with high functioning autism and ADHD. 

 

Qualified participants may receive study-related psychological evaluation(s), compensation for visit-related expenses and receive a Health Canada-approved medication to treat ADHD in children. Your doctor may continue to prescribe this medication on completion of the study. 

 

Contact Center for Pediatric Excellence at 613-726-7355 or info@cfpe.ca.    

 

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A Team - June 2019 - Newsletter & Meeting Reminder

The A-Team is primarily run by individuals with Aspergers Syndrome, for individuals with Aspergers Syndrome, with some assistance from Waterloo Region Family Network. The goal is to create a safe and welcoming environment to meet fellow adults with Aspergers Syndrome [or ASD – level 1], discuss topics of interest, share experiences, and embrace our neurological diversity.

 

In the June newsletter you will find:

  • information about the June meeting
  • a "Quotable Quote"
  • ASD Resource/ Event Spotlight

  • information about summer break

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Technokids: Exploring Daily Electronic Media Use of Children With and Without Autism

You are invited to participate in a research study conducted by and Eric Gilliland, B.A. (Hons.) under the supervision of Dr. Kimberley Babb, Ph.D., from the Department of Psychology at the University of Windsor. The results of this research will form the basis of a Master’s thesis. If you have any questions or concerns about this research, please contact Eric Gilliland at technokidstudy@gmail.com or Dr. Babb at kbabb@uwindsor.ca.

 

PURPOSE OF THE STUDY: The present study is being conducted to learn more about the patterns of daily media behaviours, different media devices used, types of content accessed, and types of media activities engaged in by children diagnosed with Autism Spectrum Disorder (i.e., autism) and children without any mental health diagnoses to understand how their electronic media use might be similar or different.

 

To learn more about this study please read the Letter of Information

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Autism Ontario 2019 One to One Summer Support Worker Reimbursement Fund

Need support so your child with ASD can go to Summer Camp?

 

The 2019 One-to-One Summer Support Worker Reimbursement Fund is available to Ontario families of children or youth with ASD who retain the services of a one-to-one support worker for their child to attend a community summer camp or summer program.  Maximum reimbursements of $600, per child or youth, (up to 18th birthday) will be made to subsidize services purchased between June 24 and August 30, 2019. 

 

A minimum of 500 families from across Ontario are expected to receive reimbursements. Reimbursements will be provided based on a random selection made from all eligible applicants who apply between May 6 and May 31, 2019.

 

Process

  1. Application:  Completed and signed applications will be accepted from May 7 to May 31, 2019. Your application must include evidence of a clear ASD diagnosis from a professional who is qualified to make the diagnosis (see website for details).
  2. Selection: By June 7, 2019, 500 families will be randomly selected and ALL applicants will be informed by letter whether they were selected to receive funds or not.
  3. Payment: Autism Ontario will issue cheques to the randomly selected families who have submitted (by no later than September 13, 2019) all original receipt(s) for fees paid by the parent of the child with ASD for the child’s one-to-one worker.

Note: Membership in Autism Ontario is not required to access the Fund.

 

Contact Ginny Kontosic with questions, 416-246-9592 ext. 225 or 

ginny@autismontario.com

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Sleep Quality in Parents of Children 4-10 years with Autism Spectrum Disorder

Sleep Quality in Parents of Children 4-10 years with Autism Spectrum Disorder - Holland Bloorview Kids Rehabilitation Hospital 

 

What is this study about?
The purpose of this study is to study the relationships between your child’s sleep and your sleep and health. This information might help us learn more about what may help to improve sleep in other parents of children with Autism Spectrum Disorder (referred to as ASD).

 

Who can participate?
English-speaking parents of a child 4-10 years of age with Autism Spectrum Disorder (1 year since diagnosis).

Parents will be excluded if he/she:

  • Work night shifts or is employed at nighttime
  • Has a physician-diagnosed sleep problem (e.g. sleep apnea, narcolepsy, restless leg syndrome etc.)
  • Has infants less than 12 months at home
  • Provides casual care for child with ASD (e.g. grandparent, babysitter, daycare or respite provider) that does not provide nighttime care for the child.
  • Child with ASD also has a permanent movement disorder (e.g. Duchenne muscular dystrophy) or neuromuscular diagnosis (e.g. CP) that requires physical care at night time (e.g. suctioning or repositioning etc.)

What’s involved?
If you agree to participate in this study, you will be asked to complete an online survey that takes about 60 minutes to complete. The survey asks questions about:

  • You and your family
  • Your child’s autism severity and behaviours
  • You and your child’s sleep
  • Your health, including stress and depression
  • Your coping and support networks

Participants may choose to enter into a draw to win one of ten $100 e-gift cards.

 

Principal Investigator:
Pam Green and Samantha Micsinszki

 

To ask questions or to sign up, contact: Samantha at  parentsleepstudy@hollandbloorview.ca

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Autism Ontario - Great Wolf Lodge

Families will have the opportunity to come and enjoy at Great Wolf Lodge at a special rate just for Autism Ontario.
 
Great Wolf Lodge is generously offering Autism Ontario families a discounted group rate for stays occurring during the below dates.  

By registering, starting May 16, 2019 at 9am, you will be given the group code, which allow you to access the reduced rate. This is for Ontario families with children with Autism, who are 18 and under. 

 

Dates:

  • September 13 - 29, 2019
  • October 27 - 31, 2019

Registration opens May 16 at 9am. Learn more here.

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Ontario Autism Consultations Now Open

Ontario’s government is engaging in a month-long series of public consultations on how children and youth with autism, including those with complex needs, can be better supported.
You can participate in the consultations during the month of May by participating in an online survey and/or through participating in telephone town hall sessions.
Visit the website to learn more about these opportunities. 

 

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Samsung x Autism Speaks Canada Tablet Program

Samsung Canada in partnership with Autism Speaks Canada have given over 1,700 tablets to support and foster closer connections with the autism community in Canada. This year they are providing 500 new Samsung tablets to individuals with autism and service organizations.

 

The Samsung x Autism Speaks Canada Tablet Program is NOW OPEN for applications!

 

 

How to Apply

  1. Visit Autism Speaks Canada CONNECT
  2. Create a free profile
  3. Apply before May 20, 2019

Eligibility Requirements

  • Canadian residents
  • Individuals with a diagnosis of autism spectrum disorder or organizations supporting individuals with autism spectrum disorder
  • Do not currently have a touch device
  • Willing to share the benefits of the tablet with Autism Speaks Canada and Samsung online community

If you have any questions or concerns, please contact SamsungxASC@autismspeakscan.ca.

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