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From time to time, the Waterloo Region Family Network (WRFN) is asked to distribute information on behalf of third parties. WRFN provides general information to self-advocates and families of children with special needs. The information provided on this website is not a recommendation, referral or endorsement of any resource, therapeutic method, or service provider. WRFN is not responsible for any information or services provided by third parties. You are urged to use independent judgment when considering any resource.

 


 

Alpine Park Renewal survey

The City of Kitchener wants to hear from the community about how you use Alpine Park and how the park could better support the community into the future.

 

Share your ideas online Aug 2-22 at EngageWR.ca/AlpinePark

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ODSP - Important Opportunity to Share Your Input

ODSP Action Coalition is seeking your input on grading how the province administers the Ontario Disability Support Program.
 
Like a teacher grading their students, we're asking folks to grade the program on key areas including benefit rates, other benefits, and the way clients are treated by the "system".

We will be holding a demonstration at Queen's Park in September and will present the results in the form of a report card at that time.
  
You will have opportunities to leave comments throughout, which we may use in future communications with the province.

You will not need to leave any identifying information. If you'd like to receive more information about ODSP Action Coalition and the work we do, please feel free to email us at [email protected] or check us out on Twitter: @ODSPAction
 

The survey will remain open until Sun. Sept. 5th, 2021.

TO ACCESS THE SURVEY, PLEASE CLICK HERE.

 

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Covid vaccines & people with Down Syndrome

We are sharing the following information provided to us by the Canadian Down Syndrome Society (CDSS). CDSS represents Canada at the Trisomy 21 Research Society (T21RS) Taskforce Meetings. T21RS has organized an international online survey to collect data about COVID-19 vaccine response among people with Down syndrome. If the survey is applicable to you, please consider taking the time to fill it out. The more responses they receive, the better the data will be.

 

We need your help! More needs to be learned about COVID-19 and the related vaccine among people with Down syndrome. The Trisomy 21 Research Society (T21RS) has organized an international online survey to collect this information.

 

You are invited to complete this survey, if you are a caregiver of a person with Down syndrome who has received the COVID-19 vaccine or who is eligible but does not plan to receive the vaccine.

 

The on-line survey:

  • takes about 15-30 minutes to complete
  • responses cannot be linked back to you (anonymous)
  • questions ask about the person’s health, COVID-19, and responses to the vaccine

 

Please click on the following link to complete the survey in the language of your choice:

English: https://is.gd/Eng_care

French: https://is.gd/Fren_care

German: https://is.gd/Ger_care

Italian: https://is.gd/Itl_care

Portuguese: https://is.gd/Port_care

Spanish: https://is.gd/Spa_care

 

Thank you for your help to collect this important information for people with Down syndrome.

T21RS COVID Taskforce

https://www.t21rs.org/

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Women with ADHD

We want to hear from you!

 

CADDAC is very interested in learning more about the experiences of girls and women with ADHD in Canada. We will be publishing a policy paper on the topic this fall and would like to include some Canadian survey data, as well as personal comments, to the existing research data. Comments will be anonymous, but will help to add depth to our paper. 

 

To complete the survey, click here.

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Family Alliance of Ontario-Individualized Funding

Individualized Funding and full portability of funding are building blocks for a full life in community; one of increased choice and control. 

 

We know for years, people have had Individualized Funding but have been told not to talk about it. 


We know people are asking for Individualized Funding for a full life, only to be told NO because it doesn’t exist except through Passport. 


We know people are having trouble moving funding from one agency to another.

 

We know that there is strength in numbers, so we have created a survey to collect some data.  This information will help us in our advocacy efforts. 

 

You can find the survey here:  https://forms.gle/2kS1fQaJd12YZikx7

 

Please help us by taking a few minutes to complete the survey.

(If you cannot access the survey through this link, please contact Joyce Balaz:  [email protected] or 519-659-3003)

 

If you are interested in, currently receiving Individualized Funding, have asked for Individualized Funding or are being denied choice in the agency,

Then we want to hear from you!

 

Join us for any or all of these quiet conversations: 

 

Sat. Aug 7 10:30 am      click here to register

Tues. Aug 10 7:00 pm     click here to register

Thurs. Aug 12 1:00 pm   click here to register

 

Please Note:  No identifying information will be included in any advocacy unless we are given written permission to do so. 

 

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Family Alliance Ontario communications

Please find the following information in this email.

 

1. DANEO Newsletter

 

2. FAO Response letter re:  Reform

 

3. ODC and FAO letter re:  Family Managed Home Care & Guardianship

 

4. Recording from May FKS - Michael Bach:  Supported Decision Making: https://us02web.zoom.us/rec/share/IFmr1DZIHx2qI1NCQO82MtL7o5A6zuPLcHYsXZ7Ab0yyNb00EeT7E5Mp1xkicWXu.7pbuft8QNVGOgCTj    Password:   3tVPb3g# 

 

5. ODSP My Benefits Link:  https://mybenefits.mcss.gov.on.ca/auth/login

 

6. Consultation on National Disability Plan Survey:  

https://www.canada.ca/en/employment-social-development/programs/accessible-canada/consultation-disability-inclusion-action-plan.html?fbclid=IwAR0l0fOOeloAqZGVZZtLPXACDXc8O7pI7tHzKlTk1hv0IZJBR6A55umkuBY

 

7. JFCY - Enhancing Access to Special Education Project (EASE):  Justice for Children and Youth (JFCY) is excited to announce our newest initiative, Enhancing Access to Special Education (EASE). We recognize that navigating different special education processes can be challenging, and it can often feel like you are alone on the journey. EASE is working to develop accessible resources to support students with special education needs and their families in navigating special education processes.  We Want to Hear From You! You can get involved by: 

 

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The Sibling Collaborative survey

So many of our siblings with disabilities are living in or near poverty. The Sibling Collaborative, in partnership with Planned Lifetime Advocacy Network (PLAN), wants to help you improve the financial security of your sibling with a disability – both today and in the future. 

But in order to create relevant resources on topics like financial planning, disability benefits, estate planning and communicating with your family, we need your input. The Sibling Collaborative is doing a survey of siblings to discover what kinds of information they would like to receive as to help their role in planning.
 

By taking 10 minutes to complete this survey, you will be eligible to win one of five $100 VISA gift certificates. 

 

Click here to complete the survey.

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Passport & SSAH Reimbursement survey

Please help FAO gather and compile information regarding delays in Passport and SSAH reimbursements by completing this survey. 

 

https://docs.google.com/forms/d/e/1FAIpQLSfwd3sNn6ilbpz2Cyml9ASxR8uE9u9KaEM4VeAKzAFGG4SyTg/viewform?usp=pp_url

 

 

 

 

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Oh! The Places You'll Go! Virtual Transition Planning Presentation

Intended for caregivers and/or students (age15-21). We will discuss the school transition plan, making the transition from school to adult life, how and when to connect to adult developmental services, Passport funding (community participation funding allocated to eligible individuals), Ontario Disability Support Program and Service Coordination.

 

Click here to view the presentation.

 

We would love to hear from you! After you view the presentation, please complete this brief survey to help us serve you better in the future.

 

Please email Shiona at [email protected] for any additional information.

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DSO-Housing Navigators survey

Housing Navigators would like your feedback and invite you to complete this survey about DSO Housing Navigation and the Housing Toolkit.

 

Survey: http://bit.ly/HN​SurveyEN

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