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From time to time, the Waterloo Region Family Network (WRFN) is asked to distribute information on behalf of third parties. WRFN provides general information to self-advocates and families of children with special needs. The information provided on this website is not a recommendation, referral or endorsement of any resource, therapeutic method, or service provider. WRFN is not responsible for any information or services provided by third parties. You are urged to use independent judgment when considering any resource.

 


 

Integration Action for Inclusion School Experiences Survey

This is aimed at learning about peoples' experiences in the school system both during COVID-19 and more generally. It is a longer survey (33 questions) aimed at trying to understand peoples' views and thoughts about schooling during COVID-19 and inclusive schooling in general. It also includes an opportunity for you to let us know your thoughts about a possible name change and if you have any time to spare as a volunteer. It should take no more than 15 minutes to complete. 

 

Complete the survey here.

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Ontario Government survey for Developmental Service Reform

While some of you may already be aware, we wanted to bring to everyone's attention the Government of Ontario's new web-page dedicated to engagement on Developmental Services Reform.

 

The web-page can be found here.  

 

The page includes a survey that asks for ideas, comments and feedback on how to improve supports for people with developmental disabilities across Ontario.

 

They will be accepting submissions until Friday, December 4th.

 

Given the significance of this consultation, we encourage everyone to participate in this survey and to also share this information with others who may be interested in participating.

 

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Racial Trauma & Healing

Are you a therapy client or therapist that self identifies as a person of colour?

Would you like to discuss your experiences in a research study?

 

Very little is known about the experiences of people of colour in psychotherapy practices in Canada. In this qualitative study, we will explore the experiences of therapy clients & therapist (RP & MSW) who identify as people of colour.

 

For more details on the study, click here.

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COVID-19 Disability Survey – Very Different than others

Researchers at the Centre for Chronic Disease Prevention and Management at UBC Okanagan have teamed up with Ontario-based Abilities Centre to launch a national COVID-19 disability survey. 

 

So, what makes this survey different from everyone else’s survey happening right now? The disability community will have access to the information from these surveys. This survey is not a snapshot in time, or used for any purposes other than to identify the needs of our community. The information collected will help develop meaningful advocacy, strategies and actions that will work towards meeting these needs. This survey will address needs over the long term, and questions will be informed directly by our disability community.

 

All Canadians who have a disability, or have a child or family member living with a disability in their household, are asked to share their unique experiences and concerns while navigating COVID-19. The survey is fully accessible. 

 

The information collected from the survey will directly impact policymakers, businesses and organizations across Canada as they develop accessible and inclusive policies, processes and services. 

 

To participate in the COVID-19 Disability Survey, visit abilitiescentre.org/disabilitysurvey

 

For more information, contact: disabilitysurvey@abilitiescentre.org or call 1 866 639 1858. 

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The Pandemic Canadian Autism Needs Assessment Survey Report

The Pandemic Canadian Autism Needs Assessment Survey and attached report was developed from a partnership between Autism Speaks Canada, the McMaster Autism Research Team (MacART) and the Canadian Autism Spectrum Disorder Alliance (CASDA). This partnership was built on a strong history of successful collaborations, and common guiding principles.

 

By coming together, we hope to achieve 3 shared goals:

  • To provide a mechanism (the survey) for Autistic people and their families to share their experiences of how they have been impacted by the COVID-19 pandemic.
  • To inform service organizations of what services and supports are most needed and helpful for Autistic people and families during this time.
  • To inform government of the need for increased supports for the autism community in response to the COVID-19 pandemic and future emergency situations.

Our survey was the first survey of the COVID-19 pandemic capturing the unique impact on the autism community in Canada. We are proud to have had 1,066 Canadians take part with 21% of respondents identifying as autistic.

 

Overall respondents shared:

  • Mental health implication of the pandemic
  • Impacts on their daily lives
  • Information about accessing supports and services

  

We are grateful to the dedicated participants of the respondents and for their input during these unprecedented times as we strive to amplify their voices.

 

Read the report here.

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Impact of Covid-19 for parents

Infant Mental Health Promotion (IMHP) at the Hospital for Sick Children, in collaboration with the Ontario Centre of Excellence for Child and Youth Mental Health (The Centre), Kids Brain Health Network (KBHN) and Children First would like to hear families’ thoughts about how our child and youth mental health system can improve the quality of services for children under 6 throughout the COVID-19 pandemic. We'd like your help to invite them to complete the survey below, which focuses on understanding:

  • What information or services were accessed during the COVID-19 pandemic, in order to support your youngest child's well-being; and
  • How we could help to improve the quality of this information and services as we continue to move through the pandemic (and perhaps a second wave).

The information we collect through this short and completely anonymous survey will help us to strengthen the supports that are available to families.

Please forward this survey to parents/caregivers in your Canadian network, as well as to any partners who could help spread the word about this survey. Eventually a summary of survey results will be available on the IMHP website at www.imhpromotion.ca.

If you have any questions about the survey, please email: magali.bouhours@sickkids.ca.
 

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Covid Survey

Infant Mental Health Promotion (IMHP) at the Hospital for Sick Children, in collaboration with the Ontario Centre of Excellence for Child and Youth Mental Health (The Centre), Kids Brain Health Network (KBHN) and Children First would like to hear parents' thoughts on how child and youth mental health system can improve the quality of services for children under 6 throughout the COVID-19 pandemic. 

 

Families are invited to complete the survey below, which focuses on understanding:

  • What information or services you accessed during the COVID-19 pandemic, in order to support your youngest child's well-being; and
  • How we could help to improve the quality of this information and services as we continue to move through the pandemic (and perhaps a second wave).

For additional information, please visit: https://surveys.sickkids.ca/surveys/?s=EJWFY9JW4E

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Accessibility Standards Canada-Consultation deadline extension

You have more time to complete our online survey if you have not done so already! We want to hear from you on how to build an accessible Canada for all!

 

Participate before September 30, 2020 to help us determine:

●  how we can engage with you

●  the research priorities for our next call for proposals

●  the areas of focus for our next set of accessibility standards

 

You can also participate by email, mail, phone, and in American Sign Language or Langue des signes québécoise! Visit our consultation webpage for more details on how to participate.

 

Please call or email us if you have any accessibility needs or questions.

Phone: 1-833-854-7628

 

 

We look forward to hearing from you!

Many thanks,

The Stakeholder Engagement Team

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Survey on Family perspectives about partnership with teachers in a time of Covid 19

Since March of this year, families have had the challenge of providing education at home in a time of a pandemic. For families who have children with disabilities, this has been an even more challenging time, with many families seeing their regular, IEP-mandated supports stopped or dramatically changed. Families may have also seen differences in interactions with teachers and other school personnel. Now, as students begin to return to school in the fall, it is critically important for families to share their needs to support their child with a disability to be successful.

 

Researchers from Queen’s University have partnered with the Family Alliance of Ontario to develop a short online survey (approx. 20 minutes to complete) to gather family perspectives about partnership with teachers in a time of COVID-19. They are looking for volunteers to participate in this survey – you are eligible if you are a caregiver of a child with a disability who is in the Ontario K-12 public school system.

 

In order to capture experiences that will occur as students resume school in various formats this month, we have extended the window to complete this survey until September 30, 2020. Results will then be compiled and shared with families and school stakeholders (school boards and the provincial government) to help inform and improve partnership with families in the 2020/2021 school year.

 

In appreciation of your time, you will be entered into a draw to win one of thirty $15 Amazon.ca gift certificates.

 

Click on this link to learn more and participate.  https://gmucehd.az1.qualtrics.com/jfe/form/SV_6PhSPzCtXdiCeFL

 

For more information about the survey, contact Heather Aldersey: hma@queensu.ca

 

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Transitional Care Study

The Centre of Family Medicine, Mobiliy Clinic and McMaster University are conducting a study for transitional youth with physical disabilities in Kitchener-Waterloo.

 

Youth individuals with special healthcare needs often lose the quality of care they received as children once they turn 18 years old and must transition to the adult healthcare system.

This study will assess the need for a local program that would aim to help youth individuals with physical disability make the transfer from specialized pediatric care to adult care.

 

Click here for study advertisment.

Click here for transitional alumnus consent.

Click here for youth & caregiver consent.

Click here for youth under 16 years old consent.

 

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