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From time to time, the Waterloo Region Family Network (WRFN) is asked to distribute information on behalf of third parties. WRFN provides general information to self-advocates and families of children with special needs. The information provided on this website is not a recommendation, referral or endorsement of any resource, therapeutic method, or service provider. WRFN is not responsible for any information or services provided by third parties. You are urged to use independent judgment when considering any resource.



Passport & SSAH Reimbursement survey

Please help FAO gather and compile information regarding delays in Passport and SSAH reimbursements by completing this survey. 







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Oh! The Places You'll Go! Virtual Transition Planning Presentation

Intended for caregivers and/or students (age15-21). We will discuss the school transition plan, making the transition from school to adult life, how and when to connect to adult developmental services, Passport funding (community participation funding allocated to eligible individuals), Ontario Disability Support Program and Service Coordination.


Click here to view the presentation.


We would love to hear from you! After you view the presentation, please complete this brief survey to help us serve you better in the future.


Please email Shiona at s.niven@sunbeamcommunity.ca for any additional information.

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DSO-Housing Navigators survey

Housing Navigators would like your feedback and invite you to complete this survey about DSO Housing Navigation and the Housing Toolkit.


Survey: http://bit.ly/HN​SurveyEN

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Toronto Family Network Newsletter

Toronto Family Network


Toronto District School Board Policy Consultation on Human Rights Deadline: April 30, 2021


Please share this link widely and encourage participation.  Toronto Family Network has made a submission that was addressed to the Senior Human Rights Policy, Education & Org Change Specialist listed as the contact person for this consultation, as well as to the Director of Education, Chair of the Board, Special Education Advisory Committee, Parent Involvement Advisory Committee and Chief Commissioner of the Ontario Human Rights Commission.


TDSB Special Education Advisory Committee (SEAC) Meeting

Next Meeting: April 19, 2021


Link to Human Rights at TDSB Page: https://www.tdsb.on.ca/About-Us/Human-Rights

FYI Other consultations include Parent and Community Involvement Policy, Specialized Schools and Programs Policy and Workplace Harassment Prevention.  


Toronto Catholic District School Board SEAC Meeting

Next Meeting: Wed, April 21, 2021




Government of Ontario News Release Ontario Extending Temporary Wage Enhancement for Personal Support Workers

March 18, 2021



From Family Alliance Ontario

Social Hour:  Sunday April 11, 2021, 8:00-9:00 pm. Who has questions about gardening?  Do you have knowledge that you can share? RSVP by Sat April 10, 2021:


Family Knowledge Share:  Wed April 28, 2021, 7:00-8:00 pm.  Rosanne Purnwasie, Organizer, Durham Sibling Group and FAO Board Member, will share information about their group.RSVP by Mon April 26, 2021: 


Family Knowledge Share on Wed May 26, 2021, 7:00-8:00 pm.   Topic:  Supported Decision Making: Community-based initiatives to advance the equal right to decide by Michael Bach with the IRIS Institute (www.irisinstitute.ca).

Family Alliance Ontario Annual General Meeting on Sat June 5, 2021 from 9:30 am.-12:00 noon.  Speaker:  Rupert Gordon, Assistant Deputy Minister will be sharing information about the Developmental Services Reform.


Family Alliance Ontario (FAO) ODSP Survey


Family Alliance Ontario wants to find out what families and people across Ontario experience when they interact with their local ODSP office. 


Family Alliance Ontario (FAO) and People for Personalized Funding (PFPF) Surveys 

Both surveys close April 16, 2021

Ontario SSAH Survey: https://docs.google.com/forms/d/e/1FAIpQLSeRkYhhETMbTM8OYsdWOFhqp2Cfq0nv1UK2yuIqP8-VJquLkQ/viewform

Ontario Passport Survey: https://docs.google.com/forms/d/e/1FAIpQLSc-ILApMbaVGSn_Nv-eIS4O5_ZOvaWs4rWKdniRy-75Kb2SlA/viewform


Developmental Services Ontario (DSO) Housing Navigation and Housing Toolkit Survey

Survey: http://bit.ly/HNSurveyEN

Responses collected until May 14, 2021


From Marilyn Dolmage

CTV investigation into class actions aired Saturday March 20th.



Advocacy Kit from People for Personalized Funding (PFPF) formerly called the Special Services at Home/Passport Coalition

Revised kit found on site: https://www.pfpf.ca/


Families for a Secure Future (FSF) April Family Gathering

April 8th from 7:00 - 8: 00 pm Eastern Time 

Zoom login details posted on FSF website: https://www.familiesforasecurefuture.ca/


Toronto Star Article

Reva was interviewed for this article and quoted.



From Jason Weppelman Client Program Manager Toronto Companies Looking to Recruit/Hire People with Disabilities/Autism/Neurodiversities




Community Living Ontario Feature Story: Provincial Budget Announces New Funding for People with Disabilities, Developmental Services

Find on website in Update Friday: March 26, 2021



The OHRC at 60

Toronto Family Network received an invitation to this 15-month commemoration and celebration. 15-month.

On March 29, 2021, the OHRC marked its 60th anniversary with a virtual celebration to mark the start of a 15-month period of commemoration and celebration of both the OHRC’s 60th anniversary and the 60th anniversary of Ontario’s Human Rights Code in June 2022. http://www.ohrc.on.ca/en/ohrc-at-60


From Amanda Bartlett-Hindley, Ontario Community Services Coalition (OCSC)

Overview of the COVID-19 vaccine in a 30 minute info session with Q&A available on OCSC website: www.ocsc-ontario.ca under “Family Forums & Links.” Also found on the website is Dr. Patricia Spindel's Advocacy Workshop Presentation.


Ontario Human Rights Commission Right to Read Public Inquiry

We have no new info to share. Last Post on the OHRC website seems to have been October 26, 2020. Please let us know if you hear anything new.



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Region of Waterloo-Survey about Child Care & Early Years Services

Dear parents/caregivers,


The Region of Waterloo is inviting you to participate in a survey about child care and early years services. We need your help to identify what is important to families. Your input is highly valued.


This survey is for all parents and caregivers who live in Waterloo Region and have at least one child age 12 years or younger. This includes all families, both those who use child care or EarlyON programs, as well as those who do not. We only need one response per family.


The survey takes about 10 minutes to complete.


Visit the survey page to learn more or to take the survey. Please feel free to share this survey link with other parents in Waterloo Region.


Thank you,

Barbara Cardow

Director, Children’s Services, Region of Waterloo

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Family Alliance Ontario-Experience with ODSP survey

FAO has been hearing about the Ontario Disability Support Program (ODSP) from our members and from our affiliate family networks. Thus we have decided to find out what other families and people across Ontario experience when they interact with their local ODSP office. Please assist us in our advocacy efforts by completing this very short survey.

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Virtual Health Care for Patients with Developmental Disabilities

What is working well?

What needs to be improved?


During Covid-19 there has been a huge increase in the delivery of virtual primary care. We are conducting interviews (online or by phone) to learn what is working well and what needs to be improved to support high quality care for patients with developmental disabililites.


We want to talk to...

  1. Adults with developmental disabilities (18+)
  2. Family members/caregivers
  3. Direct support professionals/support staff
  4. Primary care providers

Interested or want to learn more?

Contact Avra Selick at avra.selick@camh.ca or 416-535-8501 ex30127


*Small honorarium will be provided to all participants.

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Community Living Ontario-Survey

Community Living Ontario is surveying family members of a person who has an intellectual disability across Ontario. 

The purpose is to better understand what family members need and value so that our work will continue to be responsive and well-grounded.  Community Living Ontario also wants to know about family members’ awareness and attitudes toward various social and policy issues.  The survey results will guide how Community Living Ontario addresses the issues that matter most to families. 


If you are a family member of a person who has an intellectual disability, visit the link below to complete this short survey which will take about 10-15 minutes.



Please consider sharing this email with your networks. The greater the participation in this survey, the more we will be able to advocate on behalf of people who have an intellectual disability and their family members. 


If you have any questions or require a hard copy of this survey, please reach out to Amina Patel at amina@communitylivingontario.ca

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Help get our Budget message the Federal Government

Participate in the On-line Budget Consultation process and support us by asking the federal government to fund research into the creation of a medicare-type disability insurance plan for Canada.
Here's how:
Step 1: Go to the Let’s Talk Budget website: https://letstalkbudget2021.ca/pre_budget_consultations
Step 2: Go to questionnaire Button or link – a very short scroll down
Step 3:  Click on the Next Button “Take Questions”
Step 4:  There are 7 questions on this page and each one might be addressed as follows:

Question 1  - Click “Other”
Question 2 – this is a comment section, the comment might be (Copy and paste)

The creation of a national disability insurance plan would create thousands of jobs, particularly in rural and remote communities prospects while improving the employment for persons with disabilities and their families by supporting care needs. But first, we need the research.

Question 3 -  Again, go to and check ‘Other’
Question 4 – In the comment box a suggestion would be  (Copy and paste)

The economy will show real signs of improvement when persons with disabilities are employed at the same rate as other Canadians.  But for this to happen they must have the essential supports they need to be guaranteed by a Medicare type disability insurance plan.  It begins with research and public discussion.

Question 5 – Again choose ‘Other’ – NOTE: If you choose this, it will only let you make 2 selections, not 3.

A second choice here that is compatible with our message is either ‘Invest in Training’ or “Improve access to and affordability of High-Speed Internet”

Question 6:  Choose ‘Other’ - NOTE: Here too it will only let you make 2 selections, not 3.

A second choice compatible with our message might be “Provide accessible and affordable early learning and child care for all families” or “Continue to invest in affordable housing” or “Improve income support programs…”

Question 7 – Again “Other” NOTE: Here too it will only let you make 2 selections, not 3.

A second choice compatible with our message might be “Affordable Housing”

Question 8 – A possible answer might be “Research into the design and implementation issues of creating a National Disability Insurance (Medicare type) Plan”.

Question 9 – A possible answer might be “Engage persons with disabilities and their families in a discussion about what they would want a national disability insurance program to do for them by way of meaningful services and supports”.
It will then move to the next page.

Question 10 – Again “Other”
Question 11 – (only comes up after you answer ‘Other’)  The answer might be “Lack of disability supports (for family members that need it)”. This could be specified. “I need ________”

Question 12, 13, 14,  15, 16, 17 - These can be answered on its own


The closing date for the survey is Feb. 19.

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Autism Research Centre is researching a group virtual anxiety intervention for children and teens with Autism

We are currently studying whether a group therapy program called Facing Your Fears will help to reduce anxiety in children and youth with Autism Spectrum Disorder. 

For more information or get invovled, click here.

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Blog Contributor Portrait
Leah Bowman
June 15, 2021
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Blog Contributor Portrait
Waterloo Region Family Network
November 12, 2019
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