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From time to time, the Waterloo Region Family Network (WRFN) is asked to distribute information on behalf of third parties. WRFN provides general information to self-advocates and families of children with special needs. The information provided on this website is not a recommendation, referral or endorsement of any resource, therapeutic method, or service provider. WRFN is not responsible for any information or services provided by third parties. You are urged to use independent judgment when considering any resource.

 


 

WRFN Newsletter - December 2018

Just like that it's December! In this edition of Family Pulse you will find information about:

  • SEAC
  • the WRFN Annual Appeal
  • WRFN E.D. Recognized for Leadership
  • What's happening at WRFN
  • Coffee Club updates
  • Perfect Pitch
  • Reducing Holiday Stress
  • Upcoming community events

Read the online version of Family Pulse here.

Down a PDF copy here.

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WRFN Annual Appeal

'Tis the season...for Sharing & Giving
Please Donate Today!!

 

With the holiday season upon us and the warm and fuzzy feelings of family and gratitude that accompany it, we are thankful for those who make a difference in the lives of WRFN families.


This year we decided to revisit our roots as a reminder of why WRFN was originally needed and created. As one of WRFN’s five founding parents, I would like to share my family’s story with you while highlighting two of our current core programs.


Meet Kevin


He was born prematurely 29 years ago weighing just 2 pounds, 1 ounce. Kevin was missing pieces of his lungs and was hooked up to every machine imaginable.


And then… the ventilator blew holes in his lungs. There were more complications. For every step forward, Kevin took two steps back. He remained in hospital, 65 kms away from our family in the ICU for the first two years of his young life. During that time, Kevin underwent five surgeries while my husband and I struggled to navigate the hospital system.


And then…Kevin came home with an entirely new system of care for us to learn about. Our home looked like a mini ICU with a stream of professionals coming and going, daily. Imagine…all of that chaos and    no privacy. We didn’t have to imagine…we lived it. My husband and I, and our older son, were grateful  but felt isolated and alone.


For years, we wondered if there were other families traveling the same uncertain journey. And, if so, how could we meet them?


Twenty-Nine years ago there was no Waterloo Region Family Network. But, today, we are here for families when life takes an unexpected turn.


Parents benefit from our Parent Mentor Program where they are directly connected 1:1 with a volunteer parent mentor – someone who gets it and can truly understand their grief – the life they wanted for their child and the dreams they had, stolen.  

 
Families are also directly supported by Erin, our Family Resource Coach, who provides personal guidance to each family she meets helping them to understand supports and service available to them and how to access them. The need for this role and support is increasing every day. Erin has already supported 225 new families this year in addition to those already supported through our network. It’s necessary to ensure that we continue to meet this growing need.  


We could not provide these, and other programs, for families without your support. That’s why we are asking for your help this year. Your donation, today, will be matched by two friends of WRFN who have once again generously committed to matching the first $15,000 raised in our campaign.

 

For your convenience, you can donate easily online now.

 

Our network has already helped over 1700 families connect to vital resources in our community as well as to each other. But, we know there are many more out there who need us.


We ask that you please share our campaign with a friend and help us reach our campaign goal of $45,000.

Together, we can make sure that no family is ever alone!


With gratitude and warm wishes for the holiday season!

Sue Simpson
Executive Director

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WRFN Family Pulse - November 2018

November already!


In this issue of Family Pulse we decided to focus on how to talk about your child's diagnosis. Only you know your specific circumstances and the people in your circle, and only you can know what’s best to share and what’s best to keep private. 
That having been said, it can be very helpful for family and friends to understand your child’s needs and then are able to better support you and your child. 

 

You will also find information about:

  • WRFN Workshop: Creative Solutions and Supports for In Risk Students
  • Understanding High School for Students on the Autism Spectrum
  • Ask A Self-Advocate
  • One in Nine workshop
  • Coffee Club
  • Community events.

Read the online version of Family Pulse here or download the PDF copy.

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WRFN Family Pulse - October 2018

Welcome to October!


There is lots of great information in this edition of Family Pulse including information about our free Family Conference happening on November 3. Rob Klea, founder and Executive Director of New Trail Edventures Inc./New Trail Forest Therapy will be presenting on the benefits to health and wellbeing associated with being connected to nature. We will also be facilitating small group parent discussions on topics suggested by attendees. We hope you will be able to join us!

 

This edition also has information about:

  • Ask A Self-Advocate
  • A New Chapter: Families Moving Forward
  • Coffee Club
  • Going Back to Work: Ready or Not?
  • Community Updates 

Read the online version of Family Pulse here or download the PDF copy.

 

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WRFN Family Pulse - September 2018

Just like, that the summer is over! Once again, here we are transitioning back into the school year. In this edition of Family Pulse we thought it would be useful to share a quick list of tricks and tools to use during the transition.

 

Back to school is a very busy time, during which parents need to remember to look after themselves. The reality is, transition time is a difficult time for parents. Getting to know and deal with new situations isn't just difficult for children, it's difficult for caregivers too. We hope you’ll find our tips useful for your own self-care during the upcoming transition time.

 

Don’t forget to check out What’s Happening at WRFN and Upcoming Community Events—there’s lots going on!

 

Read Family Pulse online or download a copy here.   

 

Have a wonderful month and remember to take care of yourself!

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WRFN's Family Pulse - August 2018

Welcome to August!


In celebration of 100 issues of Family Pulse we have decided to share 100 things you may now know about WRFN. We hope you enjoy getting to know us a little better!


Don't miss information about Find Your Passion coming up August 25. This is a free event that allows you to try many of the accessible sport and recreation opportunities in Waterloo Region. 

 

Read Family Pulse online.

Download a PDF copy.

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WRFN's Family Pulse - July 2018

Welcome to July!


With the summer upon us we thought it would be a good idea to focus this issue of Family Pulse on the benefits of outdoor pay. While getting outside can come with a set of logistical problems, the benefits for everyone are well worth the effort! As always, there is also lots of opportunities and programs to check out at WRFN and within our community!

 

Read the Family Pulse online.

Download a PDF copy.

 

 

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WRFN Family Pulse - June 2018

We recently heard from a parent who suggested we repeat the article on stress from a past Family Pulse issue. She recently re-read it and found it very helpful. In this article we address how serious chronic stress can be, talk about some common stressors, and finally list some of the easiest and most effective ways of dealing with it. We hope you find the article helpful as well!
 

As always the community events section is filled with new opportunities so make sure to take the time to look through it!

 

Read the online version at: https://bit.ly/2sk7HGn

 

Download the PDF copy

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WRFN Family Pulse - January 2017 - May 2018

As we got closer to the launch of the new website we realized that all of our blog posts from the previous website would be lost. As we know many families go back and read past issues of Family Pulse, we wanted to make sure you had access to the issues published in 2017/18. 

 

We look forward to building a new blog with important information and initiatives to keep you and your family up to date!

 

Past Family Pulse Issues:

January 2017 - Outdoor Winter Fun! 

February 2017 - What is Family?

March 2017 - 13,000 Adults with Developmental Disabilities Receive Support

April 2017 - Being Sensory-Friendly

May 2017 - #GETLOUD for Mental Health Week

June 2017 - The Value of Peer Mentoring

July 2017 - Peer Support Groups

August 2017 - A Fresh Start For The School Year

September 2017 - Waterloo Region Special Needs Strategy Planning Table - A Story of Working Differently for Families

October 2017 - Highlights From the WRFN Family Conference 

November 2017 - Augmentative and Alternate Communication 

December 2017 - Tis the season...

January 2018 - Learn how Fair Workplaces, Better Jobs Act can affect people with disabilities & their families

February 2018 - Parachute - Cambridge Family Support Group

March 2018 - What's Happening at WRFN

April 2018 - 2018-2019 Provincial Budget

May 2018 - Music Therapy

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