P: 519.886.9150

Sign-up for our Newsletter

Follow Us on:


From time to time, the Waterloo Region Family Network (WRFN) is asked to distribute information on behalf of third parties. WRFN provides general information to self-advocates and families of children with special needs. The information provided on this website is not a recommendation, referral or endorsement of any resource, therapeutic method, or service provider. WRFN is not responsible for any information or services provided by third parties. You are urged to use independent judgment when considering any resource.




The RESPCCT Study (Research Examining the Stories of Pregnancy and Childbearing in Canada Today) is a Community-Based Participatory Research Project developed with a nationwide team of researchers, healthcare providers, and community members with lived experience of pregnancy in Canada. 

The survey will remain open until December 31, 2021. That means we have just one month left to hear from people across Canada who have been pregnant in Canada in the last ten years, and those who are currently pregnant. The survey includes pathways for childbirth and postpartum care as well as miscarriage, termination, and stillbirth, and questions for those who have been pregnant during the pandemic.

Community consultation and co-creation has been at the heart of every step of the survey development. The stories and information shared will be analyzed by sub-teams including experts, stakeholders, and those with lived experience. We have robust data-sharing agreements to ensure the raw data is accessible to communities or organizations who wish to contribute to knowledge translation efforts. Please get in touch with us for more information about opportunities for collaboration.

We've had participation from folks in every province and territory but still need more help to get the word out!

Participation is voluntary and anonymous and the survey takes as little as 20 minutes to complete. 

It is now available in 8 languages:

English - www.respcct.ca
Français du Canada - French - www.respcct.ca/fr/
ᐃᓄᒃᑎᑐᑦ - Inuktitut - www.respcct.ca/in/
Español - Spanish - www.respcct.ca/es/
ਪੰਜਾਬੀ - Punjabi - www.respcct.ca/pa/
簡體中文 - Chinese (simplified) - www.respcct.ca/zh/
繁體中文 - Chinese (traditional) - www.respcct.ca/zh_hk/
عربية - Arabic - www.respcct.ca/ar/


Posted on behalf of Kate Macdonald, if you have any questions, please contact [email protected].


Leah Bowman at 9:20 AM
RSS icon Facebook icon Twitter icon LinkedIn icon

National Study on people's experiences of care during pregnancy and childbirth in Canada

The Birth Place Lab at the University of British Columbia is conducting a CIHR-funded national study on people's experiences of care during pregnancy and childbirth in Canada called the RESPCCT Study (Research Examining the Stories of Pregnancy and Childbearing in Canada Today).


Anyone who is currently pregnant or who has had pregnancy or childbearing care in Canada in the last 10 years is welcome to participate in this online survey.


What is unique about this study is that a multi-stakeholder team including people who had pregnancy and childbearing experiences from different provinces, territories, backgrounds, identities, and circumstances spent two years working with researchers and healthcare professionals to develop a survey that is person-centered and designed through the lens and perspectives of people with lived experiences.


You may follow this link to learn more about the RESPCCT Study and to participate: www.respcct.ca.


If you have any questions, please contact: [email protected].

Leah Bowman at 1:33 PM
RSS icon Facebook icon Twitter icon LinkedIn icon

Update: Kindergarten-Grade 12 and Postsecondary Education Standards Initial Recommendations Posted for Public Feedback

Update: The timeline for public feedback for the K-12 Education initial recommendations has been extended until November 1, 2021 (see below for updated language) 

Standards Development Committees are responsible for developing and reviewing accessibility standards in Ontario. These accessibility standards help achieve the purpose of the Accessibility for Ontarians with Disabilities Act, 2005 (AODA), as Ontario moves forward on its journey to create a more accessible and inclusive province. 
The Kindergarten-Gr. 12 (K-12) and Postsecondary Education (PSE) Standards Development Committees (Committees) were tasked with developing recommendations for proposed accessibility in publicly funded K-12 schools and PSE institutions. Both Committees are comprised of people with disabilities, representatives from disability organizations, and education sector experts. 
The Government of Ontario is pleased to announce that the K-12 and PSE Committees’ Initial Recommendation Reports have been posted online for public comment.

In addition, a Technical Sub-Committee was tasked with developing recommendations on student transitions between K-12 and PSE; and between education, employment, and the community. Their report has been posted online and can be viewed here: https://www.ontario.ca/page/accessible-transitions-students-disabilities-kindergarten-grade-12-k-12-workforce-community-and


After you’ve read the initial recommendations for both the K-12 and PSE Committees, you have a couple of ways to submit your feedback: 

 Complete the online surveys at:

The timeline for public feedback for the K-12 Education initial recommendations has been extended until November 1, 2021, the same as the PSE initial recommendations timeline of November 1, 2021.

The Committees will review and consider all feedback before they finalize their recommendations and submit their final reports to the Minister for Seniors and Accessibility for consideration.

Leah Bowman at 4:26 PM
RSS icon Facebook icon Twitter icon LinkedIn icon

Holland Bloorview Seeking Community Feedback

We are reaching out to share an opportunity for you to provide input on the creation of a new learning resource for educators and school board staff across Ontario, Kindergarten to Grade 12, in English and French. This work is being led by Holland Bloorview Kids Rehabilitation Hospital, together with The Bloorview School Authority, and has been provided with funding by the Ontario Ministry of Education.


The resource, consisting of five online learning modules and a facilitator’s guide, is intended to expand on existing knowledge about accessibility, inclusion, and how to ensure that students with disabilities experience full participation in school settings. Read more about the project and individual modules here.

Engagement with stakeholders throughout the province is key to the success of the project. Holland Bloorview has prepared a brief survey for educators, students, and parents of children living with a disability. If you are interested in completing the survey, click on this link to launch the survey.


If you would like further information about the project, please contact Joanne Close
[email protected]


Leah Bowman at 1:50 PM
RSS icon Facebook icon Twitter icon LinkedIn icon

Canada Disability Benefit

Inclusion Canada provides recommendations for Canada Disability Benefit


The government of Canada is seeking feedback from disability organizations about how to design the newly announced Canada Disability Benefit.


Inclusion Canada has developed a two pager and larger policy paper that explain our recommendations for the benefit design, including the monthly benefit amount. You can use these documents to get informed and influence the design of the benefit by starting a conversation with your local candidates for the federal election.



Leah Bowman at 1:41 PM
RSS icon Facebook icon Twitter icon LinkedIn icon


Blog Contributor Portrait
Name: Leah Bowman
Posts: 292
Last Post: November 23, 2021
Waterloo Region Family Network
Name: Waterloo Region Family Network
Posts: 164
Last Post: November 12, 2019

Latest Posts

Show All Recent Posts



WRFN Newsletter Newsletter Research Resources Programs SEAC Adults Children Youth Conference Job Posting Government Support Autism Survey Camp ADHD FASD Workshops Counselling Down syndrome Events Cristina Stanger Carmen Sutherland