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From time to time, the Waterloo Region Family Network (WRFN) is asked to distribute information on behalf of third parties. WRFN provides general information to self-advocates and families of children with special needs. The information provided on this website is not a recommendation, referral or endorsement of any resource, therapeutic method, or service provider. WRFN is not responsible for any information or services provided by third parties. You are urged to use independent judgment when considering any resource.



Family Pulse-May 2022

Welcome to May! 


Inside the May issue of Family Pulse you will find information on:

SEAC Updates

Everyone is REALLY Awesome

A New Chapter
What's Happening at WRFN
Community Info, Resources & Opportunities


You can read the online version of Family Pulse here or download a pdf copy. 

Leah Bowman at 11:07 AM
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Accessibility Barriers Consultation

Session Information

During these discussions, participants will be asked to share their thoughts on the accessibility barriers they have experienced in accessing services with the CRA. To prepare, participants will be provided with discussion questions and background information two days in advance of the meeting. If you have any questions or concerns, you can also email the project team at [email protected] or call the project team at 1 (866) 217-7176.

Platform used: Zoom
Session length: Two hours



Recognizing the value of your lived experience and expertise, a $200 honourarium will be provided for two-hour group discussions, and a $100 honorarium will be provided for one-hour individual interviews.


To provide you with an honourarium, we will be collecting your name and email. This information will not be shared with anyone outside of Delaney and Associates, and this data will be destroyed once honourarium payment has been confirmed.


We request that you attend either a group consultation session or an individual interview; individuals will not be paid more than once for their participation.



To register for a session, choose a date and time that works best for you. Sessions will be held in English or French. For American Sign Language, langue des signes québécoise, captioning, and other accommodation requests, please complete the event registration for your specific virtual group discussion.


Attend a virtual group discussion in English:

May 16, 2022 | 6:00 PM PST (9:00 PM EST)
May 24, 2022 | 5:00 AM PST (8:00 AM EST)

Attend a virtual group discussion in French:

17 mai 2022 | 6:00 AM PST (9:00 AM EST)
18 mai 2022 | 2:30 PM PST (5:30 PM EST)
25 mai 2022 | 9:30 AM PST (12:30 PM EST)

Leah Bowman at 9:27 AM
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Better Nights, Better Days

Better Nights, Better Days for Children with Neurodevelopmental Disorders is a free online program based on behavioural principles that supports parents of #children aged 4-12 years old who experience difficulties falling and staying asleep.  


Our online program encourages positive sleep behaviours that will help children achieve a better quality of sleep throughout the night.  


To see if this program is a good fit for you and your child visit our website:  www.ndd.betternightsbetterdays.ca  

Leah Bowman at 12:07 PM
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Participate in a study on Legal Decision Making

Currently, PLAN (Psychology, Law and Neurodevelopment Research and Policy Group at U of G)  are inviting youth and young adults between the ages of 12 and 24 with fetal alcohol spectrum disorder (FASD) to participate in a study. Youth are eligible to participate whether or not they have had actual contact with the criminal justice system as our study asks about both hypothetical and real-world legal decisions. Youth will be asked to answer questions relevant to their own past experiences. In order to participate, youth must be able to speak English and must currently reside in Canada. 


Interested individuals can contact us directly by email: [email protected] or by telephone at 519-824-4120 ext. 53622.

Leah Bowman at 10:38 AM
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Accessibility Standards Canada-Message from the CEO

Dear Stakeholders,

It is my great pleasure to invite you to join us for a public review of a third accessibility standard!


In collaboration with CSA Group and Canada Mortgage and Housing Corporation (CMHC), we have finished the draft updates for the draft standard ASC/CSA B652, Accessible Residential Homes. We want to hear from you!


This standard will assist:

      -those who design, build, or modify homes for accessibility, and
      -those who are seeking to provide affordable and adaptable homes for people with                 disabilities.


Public review of the draft standard is open until June 13, 2022.


You can access the draft on the CSA Group Public Review site. Select your preferred language from the menu in the top right.


A one-time registration is required. You are invited to comment directly online.


We are proud to collaborate with CSA Group and CMHC in contributing to a more inclusive and barrier-free Canada.


For additional information or questions, please email CSA Group.

We welcome your expertise and comments!


Chers intervenants,


C'est avec grand plaisir que je vous invite à vous joindre à nous pour un troisième examen public d'une norme d'accessibilité!


En collaboration avec le Groupe CSA et la Société canadienne d'hypothèques et de logement (SCHL), nous avons terminé l'ébauche de la norme ASC/CSA B652, Maisons résidentielles accessibles. Nous voulons maintenant connaître votre opinion.

Cette norme aidera :


       -ceux qui conçoivent, construisent ou modifient des logements pour les rendre                    accessibles, et
       -ceux qui cherchent à fournir des logements abordables et adaptables aux                          personnes en situation de handicap.


L'examen public du projet de norme aura lieu jusqu'au 13 juin 2022.


Vous pouvez accéder à l'ébauche sur le site internet du Groupe CSA. Sélectionnez la langue de votre choix à partir du menu en haut à droite.


Une inscription unique est requise. Vous êtes invités à commenter directement en ligne.

Nous sommes fiers de collaborer avec le Groupe CSA et SCHL pour contribuer à un Canada plus inclusif et sans obstacle.


Pour toute information ou question supplémentaire, veuillez contacter le Groupe CSA.

Votre expertise et vos commentaires sont les bienvenus!

Leah Bowman at 10:30 AM
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Blog Contributor Portrait
Name: Leah Bowman
Posts: 407
Last Post: May 17, 2022
Waterloo Region Family Network
Name: Waterloo Region Family Network
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Last Post: November 12, 2019

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