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From time to time, the Waterloo Region Family Network (WRFN) is asked to distribute information on behalf of third parties. WRFN provides general information to self-advocates and families of children with special needs. The information provided on this website is not a recommendation, referral or endorsement of any resource, therapeutic method, or service provider. WRFN is not responsible for any information or services provided by third parties. You are urged to use independent judgment when considering any resource.

 


 

Autism Ontario's Adult Newsletter - June 2019

Autism Ontario has shared their June 2019 Adult Newsletter. In this newsletter you will find information about:

  • News, opportunities and research 
  • Employment 
  • Community
  • Call for Community Voices

You can read the June 2019 Autism Ontario Adult Newsletter here

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Secret Agent Society: Operation Regulation – Trasdiagnostic Trial

Do you have a child between 8-13 years of age with Neurodevelopmental Disorders?

York University invites you to participate in a research study: Secret Agent Society: Operation Regulation –  Trasdiagnostic Trial.  
 
What is the research about?

This study is about a new program aimed at helping youth with neurodevelopmental disorders cope with their emotions and handle the day-to-day stressors in their lives using a variety of activities and tools, like an emotion focused computer game, cue cards, and parent and teacher handouts. 
 
What does participation involve?

Participating involves weekly 1-hour visits to York University where you and your child will meet with a trained therapist for one-on-one therapy. Your child will get to do an assortment of activities and play games (e.g., computer games, problem solving tasks, and role playing). The activities are aimed to help build emotion regulation skills. 
 
You and your child will also participate in research to evaluate the effectiveness of the program. 
 
There is no cost to the program, except for parking and travel to the university. 
 
I’m interested! What next?

For more information, please contact sasor@yorku.ca or Dr. Jonathan Weiss, Principal Investigator on the study, at jonweiss@yorku.ca
 
You can also visit the website at: http://ddmh.lab.yorku.ca/secret-agents-society-operation-regulation/ 
 
Limited space is available, so families will be contacted on a first come, first serve basis.

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Study for children aged 6-12, with ADHD and ASD

The Center for Pediatric Excellence is conducting a research study for children aged 6-12, with ADHD and Autism Spectrum Disorder (ASD). Your child may be eligible to participate in a research study using a drug already approved by Health Canada. 

 

You child may qualify if they have been diagnosed with high functioning autism and ADHD. 

 

Qualified participants may receive study-related psychological evaluation(s), compensation for visit-related expenses and receive a Health Canada-approved medication to treat ADHD in children. Your doctor may continue to prescribe this medication on completion of the study. 

 

Contact Center for Pediatric Excellence at 613-726-7355 or info@cfpe.ca.    

 

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Confidential Market Research

Confidential market research occurring in several cities across Canada is looking for feedback from teens with ADHD and their parents - compensation of $175 to $225. 

The study will focus on their perspectives and thoughts on new therapies, and gaining insight into ways in which we can help improve the lives of teens with ADHD. Each duo that participates in this study will be compensated $175 - $225 for their time and help. The research is conducted in person and is not a group session but an individual interview with the parent and child.

This is not a sales presentation. It is strictly Market Research. It will give parent and child the opportunity to voice their opinions about this important topic. All information given is strictly confidential and the sponsoring client (a pharmaceutical company) of the research will not get any identifying information about any of the participant. The study is being conducted in several cities Canada.

Basic Qualifications
Parents:

  • Believes that medication plays a role in the ADHD treatment
  • May or may not be diagnosed with ADHD themselves

Adolescents:

  • Between the ages of 13-17 (recruit a mix of age ranges) – must be in High School or planning to attend in the fall
  • Must have taken medication for the treatment of ADHD for minimum 2 years during the past 5 years – they do not have to be taking medication today
  • Mix of genders if possible

90-minute sessions: 45 min interview with the parent followed by 45-min interview with the teen. Payment $225
60-minute sessions: 30-40-minute dyad (parent and adolescent together), then 15-20 minutes with the teen only. Payment $175

This session is being held in Toronto on June 24th and 25th.  

 

Contact info: 
dlabkin@marketresearch2go.com, 416-799-1496.

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A Team - June 2019 - Newsletter & Meeting Reminder

The A-Team is primarily run by individuals with Aspergers Syndrome, for individuals with Aspergers Syndrome, with some assistance from Waterloo Region Family Network. The goal is to create a safe and welcoming environment to meet fellow adults with Aspergers Syndrome [or ASD – level 1], discuss topics of interest, share experiences, and embrace our neurological diversity.

 

In the June newsletter you will find:

  • information about the June meeting
  • a "Quotable Quote"
  • ASD Resource/ Event Spotlight

  • information about summer break

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WRFN Family Pulse - June 2019

This month in Family Pulse we are discussing how to keep your child safe online. This is a hot-button issue for all children. Many of us did not have Internet when we were children, or were introduced as teenagers. The consequences of unsupervised Internet usage can be severe.

 

In this issue of Family Pulse you will also find:

  • SEAC Updates
  • Coffee Club update
  • What's happening at WRFN
  • Keeping your child safe online
  • Upcoming community events

You can read the June 2019 issue of Family Pulse online or download a pdf copy.

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Technokids: Exploring Daily Electronic Media Use of Children With and Without Autism

You are invited to participate in a research study conducted by and Eric Gilliland, B.A. (Hons.) under the supervision of Dr. Kimberley Babb, Ph.D., from the Department of Psychology at the University of Windsor. The results of this research will form the basis of a Master’s thesis. If you have any questions or concerns about this research, please contact Eric Gilliland at technokidstudy@gmail.com or Dr. Babb at kbabb@uwindsor.ca.

 

PURPOSE OF THE STUDY: The present study is being conducted to learn more about the patterns of daily media behaviours, different media devices used, types of content accessed, and types of media activities engaged in by children diagnosed with Autism Spectrum Disorder (i.e., autism) and children without any mental health diagnoses to understand how their electronic media use might be similar or different.

 

To learn more about this study please read the Letter of Information

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KidsAbility Youth Advisory Council (KAYAC)

KidsAbility is currently recruiting for KidsAbility Youth Advisory Council (KAYAC) 2019-2020. 

  • Monthly meetings September to June
  • For youth aged 14-24
  • Get volunteer hours
  • Plan youth events, gain advocacy skills
  • Make a difference in your community
  • Be the youth voice for KidsAbility

For more information, contact:
Joanne Duddy, transitions@kidsability.ca.

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On The House

On The House is an opportunity for Waterloo Region families that have a loved one(s) with a disability to enjoy a delicious complimentary three-course dinner for two at Proof Restaurant Lounge. Care, by a trained support person, will be provided for your loved one(s) nearby so you can relax and enjoy!
 

Participants will be chosen by random selection. If you would like to participate in On The House, please submit your interest by Thursday, May 23 to https://bit.ly/2vGc6Vm.
You can also refer a friend or family member!

 

Date: Tuesday, June 11, 2019

Time: Table seating times from 5:30-6:30pm

Location: Proof Restaurant Lounge 

 

If you have questions, please contact Krista McCann 519-886-9150 x 2 or Krista.McCann@wrfn.info.


This event is an ASD Collaborative initiative. 

 

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Caring for the Caregiver

A research project evaluating Acceptance & Commitment Training (ACT) for female caregivers of individuals with fetal alcohol spectrum disorder (FASD).


ACT seeks to help individuals to struggle less with difficult things in their lives and mindfully connect with things that are most important in a way that is loving and respectful. With an introduction to the concept of ‘mindfulness,’ ACT does not attempt to directly change or stop unwanted thoughts or feelings, but to develop a new mindful relationship with those experiences that can free a person up to being open, and to take action consistent with what they care about. This is a research project evaluating the benefits of ACT for caregivers.

 

Who Should Attend?
Female caregivers of individuals with FASD.

 

Dates & Times

May 24th: 5:30pm-9:00pm
May 25th: 9:00am-4:00pm
June 19th: 5:30pm-9:00pm
Location: Toronto Western Hospital, 9 East Wing, Group Room B (Room 9E436).
*You must attend all dates

 

Want more information?
Video: https://www.surreyplace.ca/caring-for-the-caregiver-through-act/ 
Articles: http://rdcu.be/I6jT & https://bit.ly/2tSUbcZ
 

Interested?
Contact Brianne Redquest at brianne.redquest@camh.ca or 416-535-8501 ext. 33923

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