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From time to time, the Waterloo Region Family Network (WRFN) is asked to distribute information on behalf of third parties. WRFN provides general information to self-advocates and families of children with special needs. The information provided on this website is not a recommendation, referral or endorsement of any resource, therapeutic method, or service provider. WRFN is not responsible for any information or services provided by third parties. You are urged to use independent judgment when considering any resource.

 


 

Accessibility Standards Canada-Consultation deadline extension

You have more time to complete our online survey if you have not done so already! We want to hear from you on how to build an accessible Canada for all!

 

Participate before September 30, 2020 to help us determine:

●  how we can engage with you

●  the research priorities for our next call for proposals

●  the areas of focus for our next set of accessibility standards

 

You can also participate by email, mail, phone, and in American Sign Language or Langue des signes québécoise! Visit our consultation webpage for more details on how to participate.

 

Please call or email us if you have any accessibility needs or questions.

Phone: 1-833-854-7628

 

 

We look forward to hearing from you!

Many thanks,

The Stakeholder Engagement Team

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Survey on Family perspectives about partnership with teachers in a time of Covid 19

Since March of this year, families have had the challenge of providing education at home in a time of a pandemic. For families who have children with disabilities, this has been an even more challenging time, with many families seeing their regular, IEP-mandated supports stopped or dramatically changed. Families may have also seen differences in interactions with teachers and other school personnel. Now, as students begin to return to school in the fall, it is critically important for families to share their needs to support their child with a disability to be successful.

 

Researchers from Queen’s University have partnered with the Family Alliance of Ontario to develop a short online survey (approx. 20 minutes to complete) to gather family perspectives about partnership with teachers in a time of COVID-19. They are looking for volunteers to participate in this survey – you are eligible if you are a caregiver of a child with a disability who is in the Ontario K-12 public school system.

 

In order to capture experiences that will occur as students resume school in various formats this month, we have extended the window to complete this survey until September 30, 2020. Results will then be compiled and shared with families and school stakeholders (school boards and the provincial government) to help inform and improve partnership with families in the 2020/2021 school year.

 

In appreciation of your time, you will be entered into a draw to win one of thirty $15 Amazon.ca gift certificates.

 

Click on this link to learn more and participate.  https://gmucehd.az1.qualtrics.com/jfe/form/SV_6PhSPzCtXdiCeFL

 

For more information about the survey, contact Heather Aldersey: hma@queensu.ca

 

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Transitional Care Study

The Centre of Family Medicine, Mobiliy Clinic and McMaster University are conducting a study for transitional youth with physical disabilities in Kitchener-Waterloo.

 

Youth individuals with special healthcare needs often lose the quality of care they received as children once they turn 18 years old and must transition to the adult healthcare system.

This study will assess the need for a local program that would aim to help youth individuals with physical disability make the transfer from specialized pediatric care to adult care.

 

Click here for study advertisment.

Click here for transitional alumnus consent.

Click here for youth & caregiver consent.

Click here for youth under 16 years old consent.

 

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Autism Ontario-Raise the Flag events

While COVID-19 will impact many of Autism Ontario's Raise the Flag events for World Autism Awareness Day, they invite you to visit their Raise the Flag website so you and your family can make use of the curriculum and content and safely celebrate World Autism Awareness Day. They will announce rescheduled events as they become available on their website and through their social media outlets.

 

Meanwhile, they are building a resource list of activities that families can do together during the extended period beyond the March break.  They invite you to share your thoughts by completing this brief survey.   Let them know how they can stay connected and supportive to Ontario families during this time. 

 

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Microboards

Information Gathering from those who have a Microboard, Aroha or Self-Directed Support Organization

Microboards Ontario provides leadership in the development of Microboards through education, advocacy and support to people and communities across Ontario. Our vision is that any person within Ontario who wants a Microboard is supported to have one.  

Currently, we are interested in finding out as much as we can about the experience of people with disabilities, their families and/or loved ones who have already established their own supportive not-for profit organization. This type of organization may be referred to as a Microboard, Aroha or Self-Directed Support Organization.

If you know someone in Ontario who has already created a Microboard, Aroha or Self-Directed Support Organization please pass this survey along by sending the link.

https://www.surveymonkey.com/r/?sm=qKW2b52U0sxY66hyAem8mHncEyFIlbZzAOAmpjz3ICo_3D

Note: This survey is completely anonymous. The data that we collect will inform our understanding and therefore Microboards Ontario’s strategic direction over the next few years.

If you are interested in having contact with Microboards Ontario for information and /or if you would like to share your story and insights with MBO, please contact us by emailing our Provincial Consultant, Judith McGill at jlmcgill11@gmail.com or calling at (416) 997-3311

Visit our website at www.microboardsontario.com.

 

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Autism Ontario’s Provincially Speaking Survey – 2018 Edition

In 2017, Autism Ontario launched the first annual Provincially Speaking Survey!

 

Autism Ontario listened to what you had to say and communicated that to service providers, government representatives, professionals and community groups.   A brief snapshot of the results can be seen here.
 
Now, based on your feedback, Autism Ontario has fine-tuned the questions to gather information from both caregivers and adults about the state of autism services in Ontario in 2018.

The information you provide will help Autism Ontario give informed feedback to stakeholders across Ontario.  They will also incorporate your valuable perspective into their future programs and advocacy work.

 

The survey will take approximately 30 minutes to complete. You may also save your answers as you go along, and return to the survey at any time to complete it. Complete the survey so you can enter for a chance to win one of three $100 Amazon gift cards! The survey will be open until June 5th, 2018.

 

Autism Ontario - Survey 2018

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