P: 519.886.9150

E: info@wrfn.info

Sign-up for our Newsletter

Follow us on:

Facebook Twitter





From time to time, the Waterloo Region Family Network (WRFN) is asked to distribute information on behalf of third parties. WRFN provides general information to self-advocates and families of children with special needs. The information provided on this website is not a recommendation, referral or endorsement of any resource, therapeutic method, or service provider. WRFN is not responsible for any information or services provided by third parties. You are urged to use independent judgment when considering any resource.



Family Alliance of Ontario-Individualized Funding

Individualized Funding and full portability of funding are building blocks for a full life in community; one of increased choice and control. 


We know for years, people have had Individualized Funding but have been told not to talk about it. 

We know people are asking for Individualized Funding for a full life, only to be told NO because it doesn’t exist except through Passport. 

We know people are having trouble moving funding from one agency to another.


We know that there is strength in numbers, so we have created a survey to collect some data.  This information will help us in our advocacy efforts. 


You can find the survey here:  https://forms.gle/2kS1fQaJd12YZikx7


Please help us by taking a few minutes to complete the survey.

(If you cannot access the survey through this link, please contact Joyce Balaz:  joyci@rogers.com or 519-659-3003)


If you are interested in, currently receiving Individualized Funding, have asked for Individualized Funding or are being denied choice in the agency,

Then we want to hear from you!


Join us for any or all of these quiet conversations: 


Sat. Aug 7 10:30 am      click here to register

Tues. Aug 10 7:00 pm     click here to register

Thurs. Aug 12 1:00 pm   click here to register


Please Note:  No identifying information will be included in any advocacy unless we are given written permission to do so. 


Subscribe to this Blog Like on Facebook Tweet this! Share on LinkedIn

Family Alliance Ontario communications

Please find the following information in this email.


1. DANEO Newsletter


2. FAO Response letter re:  Reform


3. ODC and FAO letter re:  Family Managed Home Care & Guardianship


4. Recording from May FKS - Michael Bach:  Supported Decision Making: https://us02web.zoom.us/rec/share/IFmr1DZIHx2qI1NCQO82MtL7o5A6zuPLcHYsXZ7Ab0yyNb00EeT7E5Mp1xkicWXu.7pbuft8QNVGOgCTj    Password:   3tVPb3g# 


5. ODSP My Benefits Link:  https://mybenefits.mcss.gov.on.ca/auth/login


6. Consultation on National Disability Plan Survey:  



7. JFCY - Enhancing Access to Special Education Project (EASE):  Justice for Children and Youth (JFCY) is excited to announce our newest initiative, Enhancing Access to Special Education (EASE). We recognize that navigating different special education processes can be challenging, and it can often feel like you are alone on the journey. EASE is working to develop accessible resources to support students with special education needs and their families in navigating special education processes.  We Want to Hear From You! You can get involved by: 


Subscribe to this Blog Like on Facebook Tweet this! Share on LinkedIn

The Sibling Collaborative survey

So many of our siblings with disabilities are living in or near poverty. The Sibling Collaborative, in partnership with Planned Lifetime Advocacy Network (PLAN), wants to help you improve the financial security of your sibling with a disability – both today and in the future. 

But in order to create relevant resources on topics like financial planning, disability benefits, estate planning and communicating with your family, we need your input. The Sibling Collaborative is doing a survey of siblings to discover what kinds of information they would like to receive as to help their role in planning.

By taking 10 minutes to complete this survey, you will be eligible to win one of five $100 VISA gift certificates. 


Click here to complete the survey.

Subscribe to this Blog Like on Facebook Tweet this! Share on LinkedIn

Passport & SSAH Reimbursement survey

Please help FAO gather and compile information regarding delays in Passport and SSAH reimbursements by completing this survey. 







Subscribe to this Blog Like on Facebook Tweet this! Share on LinkedIn

Oh! The Places You'll Go! Virtual Transition Planning Presentation

Intended for caregivers and/or students (age15-21). We will discuss the school transition plan, making the transition from school to adult life, how and when to connect to adult developmental services, Passport funding (community participation funding allocated to eligible individuals), Ontario Disability Support Program and Service Coordination.


Click here to view the presentation.


We would love to hear from you! After you view the presentation, please complete this brief survey to help us serve you better in the future.


Please email Shiona at s.niven@sunbeamcommunity.ca for any additional information.

Subscribe to this Blog Like on Facebook Tweet this! Share on LinkedIn

DSO-Housing Navigators survey

Housing Navigators would like your feedback and invite you to complete this survey about DSO Housing Navigation and the Housing Toolkit.


Survey: http://bit.ly/HN​SurveyEN

Subscribe to this Blog Like on Facebook Tweet this! Share on LinkedIn

Toronto Family Network Newsletter

Toronto Family Network


Toronto District School Board Policy Consultation on Human Rights Deadline: April 30, 2021


Please share this link widely and encourage participation.  Toronto Family Network has made a submission that was addressed to the Senior Human Rights Policy, Education & Org Change Specialist listed as the contact person for this consultation, as well as to the Director of Education, Chair of the Board, Special Education Advisory Committee, Parent Involvement Advisory Committee and Chief Commissioner of the Ontario Human Rights Commission.


TDSB Special Education Advisory Committee (SEAC) Meeting

Next Meeting: April 19, 2021


Link to Human Rights at TDSB Page: https://www.tdsb.on.ca/About-Us/Human-Rights

FYI Other consultations include Parent and Community Involvement Policy, Specialized Schools and Programs Policy and Workplace Harassment Prevention.  


Toronto Catholic District School Board SEAC Meeting

Next Meeting: Wed, April 21, 2021




Government of Ontario News Release Ontario Extending Temporary Wage Enhancement for Personal Support Workers

March 18, 2021



From Family Alliance Ontario

Social Hour:  Sunday April 11, 2021, 8:00-9:00 pm. Who has questions about gardening?  Do you have knowledge that you can share? RSVP by Sat April 10, 2021:


Family Knowledge Share:  Wed April 28, 2021, 7:00-8:00 pm.  Rosanne Purnwasie, Organizer, Durham Sibling Group and FAO Board Member, will share information about their group.RSVP by Mon April 26, 2021: 


Family Knowledge Share on Wed May 26, 2021, 7:00-8:00 pm.   Topic:  Supported Decision Making: Community-based initiatives to advance the equal right to decide by Michael Bach with the IRIS Institute (www.irisinstitute.ca).

Family Alliance Ontario Annual General Meeting on Sat June 5, 2021 from 9:30 am.-12:00 noon.  Speaker:  Rupert Gordon, Assistant Deputy Minister will be sharing information about the Developmental Services Reform.


Family Alliance Ontario (FAO) ODSP Survey


Family Alliance Ontario wants to find out what families and people across Ontario experience when they interact with their local ODSP office. 


Family Alliance Ontario (FAO) and People for Personalized Funding (PFPF) Surveys 

Both surveys close April 16, 2021

Ontario SSAH Survey: https://docs.google.com/forms/d/e/1FAIpQLSeRkYhhETMbTM8OYsdWOFhqp2Cfq0nv1UK2yuIqP8-VJquLkQ/viewform

Ontario Passport Survey: https://docs.google.com/forms/d/e/1FAIpQLSc-ILApMbaVGSn_Nv-eIS4O5_ZOvaWs4rWKdniRy-75Kb2SlA/viewform


Developmental Services Ontario (DSO) Housing Navigation and Housing Toolkit Survey

Survey: http://bit.ly/HNSurveyEN

Responses collected until May 14, 2021


From Marilyn Dolmage

CTV investigation into class actions aired Saturday March 20th.



Advocacy Kit from People for Personalized Funding (PFPF) formerly called the Special Services at Home/Passport Coalition

Revised kit found on site: https://www.pfpf.ca/


Families for a Secure Future (FSF) April Family Gathering

April 8th from 7:00 - 8: 00 pm Eastern Time 

Zoom login details posted on FSF website: https://www.familiesforasecurefuture.ca/


Toronto Star Article

Reva was interviewed for this article and quoted.



From Jason Weppelman Client Program Manager Toronto Companies Looking to Recruit/Hire People with Disabilities/Autism/Neurodiversities




Community Living Ontario Feature Story: Provincial Budget Announces New Funding for People with Disabilities, Developmental Services

Find on website in Update Friday: March 26, 2021



The OHRC at 60

Toronto Family Network received an invitation to this 15-month commemoration and celebration. 15-month.

On March 29, 2021, the OHRC marked its 60th anniversary with a virtual celebration to mark the start of a 15-month period of commemoration and celebration of both the OHRC’s 60th anniversary and the 60th anniversary of Ontario’s Human Rights Code in June 2022. http://www.ohrc.on.ca/en/ohrc-at-60


From Amanda Bartlett-Hindley, Ontario Community Services Coalition (OCSC)

Overview of the COVID-19 vaccine in a 30 minute info session with Q&A available on OCSC website: www.ocsc-ontario.ca under “Family Forums & Links.” Also found on the website is Dr. Patricia Spindel's Advocacy Workshop Presentation.


Ontario Human Rights Commission Right to Read Public Inquiry

We have no new info to share. Last Post on the OHRC website seems to have been October 26, 2020. Please let us know if you hear anything new.



Subscribe to this Blog Like on Facebook Tweet this! Share on LinkedIn

Region of Waterloo-Survey about Child Care & Early Years Services

Dear parents/caregivers,


The Region of Waterloo is inviting you to participate in a survey about child care and early years services. We need your help to identify what is important to families. Your input is highly valued.


This survey is for all parents and caregivers who live in Waterloo Region and have at least one child age 12 years or younger. This includes all families, both those who use child care or EarlyON programs, as well as those who do not. We only need one response per family.


The survey takes about 10 minutes to complete.


Visit the survey page to learn more or to take the survey. Please feel free to share this survey link with other parents in Waterloo Region.


Thank you,

Barbara Cardow

Director, Children’s Services, Region of Waterloo

Subscribe to this Blog Like on Facebook Tweet this! Share on LinkedIn

Family Alliance Ontario-Experience with ODSP survey

FAO has been hearing about the Ontario Disability Support Program (ODSP) from our members and from our affiliate family networks. Thus we have decided to find out what other families and people across Ontario experience when they interact with their local ODSP office. Please assist us in our advocacy efforts by completing this very short survey.

Subscribe to this Blog Like on Facebook Tweet this! Share on LinkedIn

Virtual Health Care for Patients with Developmental Disabilities

What is working well?

What needs to be improved?


During Covid-19 there has been a huge increase in the delivery of virtual primary care. We are conducting interviews (online or by phone) to learn what is working well and what needs to be improved to support high quality care for patients with developmental disabililites.


We want to talk to...

  1. Adults with developmental disabilities (18+)
  2. Family members/caregivers
  3. Direct support professionals/support staff
  4. Primary care providers

Interested or want to learn more?

Contact Avra Selick at avra.selick@camh.ca or 416-535-8501 ex30127


*Small honorarium will be provided to all participants.

Subscribe to this Blog Like on Facebook Tweet this! Share on LinkedIn


Blog Contributor Portrait
Leah Bowman
August 3, 2021
show Leah's posts
Blog Contributor Portrait
Waterloo Region Family Network
November 12, 2019
show Waterloo Region's posts

Latest Posts

Show All Recent Posts



Everything WRFN Newsletter Newsletter Research Resources Programs SEAC Adults Children Youth Conference Job Posting Government Support Autism Survey Camp ADHD FASD Workshops Counselling Down syndrome Events Cristina Stanger Carmen Sutherland