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From time to time, the Waterloo Region Family Network (WRFN) is asked to distribute information on behalf of third parties. WRFN provides general information to self-advocates and families of children with special needs. The information provided on this website is not a recommendation, referral or endorsement of any resource, therapeutic method, or service provider. WRFN is not responsible for any information or services provided by third parties. You are urged to use independent judgment when considering any resource.

 


 

Secret Agent Society: Operation Regulation – Trasdiagnostic Trial

Do you have a child between 8-13 years of age with Neurodevelopmental Disorders?

York University invites you to participate in a research study: Secret Agent Society: Operation Regulation –  Trasdiagnostic Trial.  
 
What is the research about?

This study is about a new program aimed at helping youth with neurodevelopmental disorders cope with their emotions and handle the day-to-day stressors in their lives using a variety of activities and tools, like an emotion focused computer game, cue cards, and parent and teacher handouts. 
 
What does participation involve?

Participating involves weekly 1-hour visits to York University where you and your child will meet with a trained therapist for one-on-one therapy. Your child will get to do an assortment of activities and play games (e.g., computer games, problem solving tasks, and role playing). The activities are aimed to help build emotion regulation skills. 
 
You and your child will also participate in research to evaluate the effectiveness of the program. 
 
There is no cost to the program, except for parking and travel to the university. 
 
I’m interested! What next?

For more information, please contact sasor@yorku.ca or Dr. Jonathan Weiss, Principal Investigator on the study, at jonweiss@yorku.ca
 
You can also visit the website at: http://ddmh.lab.yorku.ca/secret-agents-society-operation-regulation/ 
 
Limited space is available, so families will be contacted on a first come, first serve basis.

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Confidential Market Research

Confidential market research occurring in several cities across Canada is looking for feedback from teens with ADHD and their parents - compensation of $175 to $225. 

The study will focus on their perspectives and thoughts on new therapies, and gaining insight into ways in which we can help improve the lives of teens with ADHD. Each duo that participates in this study will be compensated $175 - $225 for their time and help. The research is conducted in person and is not a group session but an individual interview with the parent and child.

This is not a sales presentation. It is strictly Market Research. It will give parent and child the opportunity to voice their opinions about this important topic. All information given is strictly confidential and the sponsoring client (a pharmaceutical company) of the research will not get any identifying information about any of the participant. The study is being conducted in several cities Canada.

Basic Qualifications
Parents:

  • Believes that medication plays a role in the ADHD treatment
  • May or may not be diagnosed with ADHD themselves

Adolescents:

  • Between the ages of 13-17 (recruit a mix of age ranges) – must be in High School or planning to attend in the fall
  • Must have taken medication for the treatment of ADHD for minimum 2 years during the past 5 years – they do not have to be taking medication today
  • Mix of genders if possible

90-minute sessions: 45 min interview with the parent followed by 45-min interview with the teen. Payment $225
60-minute sessions: 30-40-minute dyad (parent and adolescent together), then 15-20 minutes with the teen only. Payment $175

This session is being held in Toronto on June 24th and 25th.  

 

Contact info: 
dlabkin@marketresearch2go.com, 416-799-1496.

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KidsAbility Youth Advisory Council (KAYAC)

KidsAbility is currently recruiting for KidsAbility Youth Advisory Council (KAYAC) 2019-2020. 

  • Monthly meetings September to June
  • For youth aged 14-24
  • Get volunteer hours
  • Plan youth events, gain advocacy skills
  • Make a difference in your community
  • Be the youth voice for KidsAbility

For more information, contact:
Joanne Duddy, transitions@kidsability.ca.

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Autism Ontario 2019 One to One Summer Support Worker Reimbursement Fund

Need support so your child with ASD can go to Summer Camp?

 

The 2019 One-to-One Summer Support Worker Reimbursement Fund is available to Ontario families of children or youth with ASD who retain the services of a one-to-one support worker for their child to attend a community summer camp or summer program.  Maximum reimbursements of $600, per child or youth, (up to 18th birthday) will be made to subsidize services purchased between June 24 and August 30, 2019. 

 

A minimum of 500 families from across Ontario are expected to receive reimbursements. Reimbursements will be provided based on a random selection made from all eligible applicants who apply between May 6 and May 31, 2019.

 

Process

  1. Application:  Completed and signed applications will be accepted from May 7 to May 31, 2019. Your application must include evidence of a clear ASD diagnosis from a professional who is qualified to make the diagnosis (see website for details).
  2. Selection: By June 7, 2019, 500 families will be randomly selected and ALL applicants will be informed by letter whether they were selected to receive funds or not.
  3. Payment: Autism Ontario will issue cheques to the randomly selected families who have submitted (by no later than September 13, 2019) all original receipt(s) for fees paid by the parent of the child with ASD for the child’s one-to-one worker.

Note: Membership in Autism Ontario is not required to access the Fund.

 

Contact Ginny Kontosic with questions, 416-246-9592 ext. 225 or 

ginny@autismontario.com

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Sleep Quality in Parents of Children 4-10 years with Autism Spectrum Disorder

Sleep Quality in Parents of Children 4-10 years with Autism Spectrum Disorder - Holland Bloorview Kids Rehabilitation Hospital 

 

What is this study about?
The purpose of this study is to study the relationships between your child’s sleep and your sleep and health. This information might help us learn more about what may help to improve sleep in other parents of children with Autism Spectrum Disorder (referred to as ASD).

 

Who can participate?
English-speaking parents of a child 4-10 years of age with Autism Spectrum Disorder (1 year since diagnosis).

Parents will be excluded if he/she:

  • Work night shifts or is employed at nighttime
  • Has a physician-diagnosed sleep problem (e.g. sleep apnea, narcolepsy, restless leg syndrome etc.)
  • Has infants less than 12 months at home
  • Provides casual care for child with ASD (e.g. grandparent, babysitter, daycare or respite provider) that does not provide nighttime care for the child.
  • Child with ASD also has a permanent movement disorder (e.g. Duchenne muscular dystrophy) or neuromuscular diagnosis (e.g. CP) that requires physical care at night time (e.g. suctioning or repositioning etc.)

What’s involved?
If you agree to participate in this study, you will be asked to complete an online survey that takes about 60 minutes to complete. The survey asks questions about:

  • You and your family
  • Your child’s autism severity and behaviours
  • You and your child’s sleep
  • Your health, including stress and depression
  • Your coping and support networks

Participants may choose to enter into a draw to win one of ten $100 e-gift cards.

 

Principal Investigator:
Pam Green and Samantha Micsinszki

 

To ask questions or to sign up, contact: Samantha at  parentsleepstudy@hollandbloorview.ca

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CMHRT Psychology Consultation Services

Description of the Psychological Consultation Service

The Centre for Mental Health Research and Treatment (CMHRT) psychological consultation service is intended for clients or parents and caregivers of children or youth who have had a previous psychological assessment and who wish to better understand the implications of the assessment results for themselves or for their child.

How does the Psychological Consultation Service Work?

First, the client/parent/guardian provides the CMHRT clinician with a copy of all relevant previous psychological assessment reports and other pertinent information (such as psychiatric reports, academic assessments, etc.). The clinician reviews this information in order to translate the technical psychological testing information into accessible language. A basic handout is developed that summarizes the client’s learning strengths and challenges, based upon the available previous psychological assessment information.

Next, the assigned clinician meets with the client or client’s parent or caregiver (and case manager, or others as appropriate) to review the assessment information. The clinician uses knowledge of tests and test results, as well as knowledge of development, to interpret the implications of those results for current functioning. The client or parent/guardian (if a child or younger adolescent) contributes observations of current functioning and together the clinician and the family co-create an understanding of the implications of the assessment data for everyday life. Key strategies and recommendations are also discussed and shared. 

Lastly, the CMHRT clinician provides a consultation document to the client or parent/guardian that summarizes the client’s learning in accessible language. If the previous assessment results no longer appear to fit the client, an outcome of the consultation may include the recommendation for an updated psychological assessment.  

Accessing the Psychological Consultation Service

To begin our intake process, please complete our online intake form or call the Centre for Mental Health Research and Treatment at 519-888-4567 x33842 or send us an email at cmhrtintake@uwaterloo.ca.  Please mention that you are specifically requesting a consultation. The CMHRT Director, Dr. Marjory Phillips, will then contact you to discuss the request. 

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Autism Ontario - Great Wolf Lodge

Families will have the opportunity to come and enjoy at Great Wolf Lodge at a special rate just for Autism Ontario.
 
Great Wolf Lodge is generously offering Autism Ontario families a discounted group rate for stays occurring during the below dates.  

By registering, starting May 16, 2019 at 9am, you will be given the group code, which allow you to access the reduced rate. This is for Ontario families with children with Autism, who are 18 and under. 

 

Dates:

  • September 13 - 29, 2019
  • October 27 - 31, 2019

Registration opens May 16 at 9am. Learn more here.

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Ontario Autism Consultations Now Open

Ontario’s government is engaging in a month-long series of public consultations on how children and youth with autism, including those with complex needs, can be better supported.
You can participate in the consultations during the month of May by participating in an online survey and/or through participating in telephone town hall sessions.
Visit the website to learn more about these opportunities. 

 

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Samsung x Autism Speaks Canada Tablet Program

Samsung Canada in partnership with Autism Speaks Canada have given over 1,700 tablets to support and foster closer connections with the autism community in Canada. This year they are providing 500 new Samsung tablets to individuals with autism and service organizations.

 

The Samsung x Autism Speaks Canada Tablet Program is NOW OPEN for applications!

 

 

How to Apply

  1. Visit Autism Speaks Canada CONNECT
  2. Create a free profile
  3. Apply before May 20, 2019

Eligibility Requirements

  • Canadian residents
  • Individuals with a diagnosis of autism spectrum disorder or organizations supporting individuals with autism spectrum disorder
  • Do not currently have a touch device
  • Willing to share the benefits of the tablet with Autism Speaks Canada and Samsung online community

If you have any questions or concerns, please contact SamsungxASC@autismspeakscan.ca.

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Golf Lessons for Persons with Disabilities

Golf Clinic

​During the 3 week program, time will be spent on the putting & driving range, pitch & putt course and you will play a couple holes on the full course.
Should you decide to stay for the 12 week league, the cost of the clinic will be deducted from the league fee.
5:30-6:30 p.m. (5-11 years) - Code: 33389
6:30-7:30 p.m. (12-17 years) - Code: 33390
7:30-8:30 p.m. (18 years+) - Code: 33391
May 30 to June 13 | Cost: $35

Family, friends and support workers welcome.  

 

Golf League
A 12 week program with individual instruction while playing a few holes on the regulation sized course.
6:30-8 p.m. | Code: 33393
May 30 to August 15 | Cost: $95

Family, friends and support workers welcome.  

 

Registration: www.kitchener.ca/specializedprograms or call 519-741-2200 x7228.

 

This program is put on by:

  • KidsAbility
  • The City of Waterloo
  • City of Kitchener
  • Waterloo Region District School Board
  • Special Olympics Ontario

 

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